tag:blogger.com,1999:blog-20870893364433918562024-03-05T21:16:12.220-08:00Team DelaneyTeam Delaneyhttp://www.blogger.com/profile/11970319706871986429noreply@blogger.comBlogger223125tag:blogger.com,1999:blog-2087089336443391856.post-20729456696962033352015-02-24T12:25:00.001-08:002015-02-24T12:25:48.202-08:00Keeping busy with some good news and fun times......
After a busy last week, Delaney is enjoying herself and time with the family. Delaney had an eye appointment and an echocardiogram for her heat. As for her eye appointment, it went very well. Delaney has been able to maintain full and equal vision in both eyes. A huge relief and much to be thankful for. There is now serious talk and communication between Delaney's neurosurgery team and neuro oncologist of a possible eye operation this May to straighten and correct her eye. Due to the inward eye drift or strabismus, she constantly sees double vision. Furthermore she continues to fight off styes, in both eyes, and is now on oral medication 2x per day and topical medication 3x per day. This is in hopes to clear up the styes within 5 weeks so she can proceed with the eye operation. If the styes are present, there cannot be an operation. Now on to the echocardiogram. This is the fourth echocardiogram Delaney has had, but the first one with out her Broviac or central line in place. Before it was recently removed it was hard to get a full, clear, unobstructed view of the function of her heart. With all of the chemotherapy she had received via the Broviac, it was delivered directly to her heart and dispersed throughout her body. After 1 year post treatment of chemotherapy Mommy and Daddy received a call from the Pediatric Cardiologist who read the results of her echocardiogram. It was wonderful news, news that her heart is functioning normal, with no side effects. Again we could not be more thankful and blessed. Lastly Delaney's full brain and spine MRI is set for March 10th, at 8am. But as that day full of stress and anxiety closes in, Delaney is filling her days with smiles, silly antics around the house, small outings, and having fun modeling her new clothes, shoes, and socks. Helping Mommy and Daddy hide the ugly ball of emotions that at times overwhelm them. We thank each one of you who have, and continue to support Delaney in her story and in her road to full recovery. Thank you. Thank you for all the prayers, love, and support. As always....... GO TEAM DELANEY!!!!
<br><br>
"And though she be but LITTLE, she is FIERCE!"
<Br><br>
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As we head to Delaney's appointments this week, today will be exactly 1 year ago, Delaney received her third and last autologous bone marrow transplant. That was the completion of her 6 rounds of aggressive chemotherapy. Upon completion Delaney was able to ring a bell three times loud, sounding the completion of her chemotherapy and the closing of another chapter. Above is a picture from one year ago and one from today. We are blessed to be where we are today. On this day, Delaney, for the third time, received her own stem cells back that were taken from her by a apheresis machine, and preserved. After each round of aggressive chemotherapy at UCSF. The bone marrow transplant took place, using those very stem cells to give back to Delaney, to "rescue" herself, earning another birthday. The chemotherapy she received was too much for Delaney's little body to recover from. And yet again Mommy and Daddy continued with the tradition of a bone marrow transplant, singing happy birthday to Delaney, but this time with a small, small, sense of relief that mommy and daddy will not have to witness Delaney go through the pain, sickness, and destruction of chemotherapy. As many of you know Delaney is still immunosuppressed, a year later from the chemotherapy she received. Little Miss Fierce is very happy and playful with her brothers and is getting stronger. We are thankful beyond words. Thank you for all the prayers, love, and support. As always...... GO TEAM DELANEY!!!
<Br><br>
Happy Birthday Delaney, we love you.
<br><br>
"And though she be but LITTLE, she is FIERCE!"
<br><br>
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Things have been progressing well for Delaney, but that does not go without saying she stills has many challenges and new things to manage. Delaney was finally able to shake the cold she had. We are thankful it was just a cold and did not turn into anything worse, our fear being that she is still immunosuppressed. Delaney had her first dentist appointment after the completion of her treatment, and we did not know what to expect. Delaney did well at her appointment, however as a result of the aggressive chemotherapy and radiation treatment, at a the age of 3 1/2 Delaney has the start of 3 to 4 cavities. For a period of 6 months Delaney was not able to brush her teeth because she was neutropenic, and had to use toothettes. A sponge like toothbrush that would not cause cuts or abrasions, as a toothbrush would, exposing her to bacteria. This was something we were aware of, and now must manage. However, we put it in perspective, they are just cavities, just another thing to watch. Her dentist appointments will be every 3 months, to track and monitor the cavities in the hopes they do not get worse. Next week will be a busy one for Delaney. She will have a follow up appointment with her eye doctor for her esotropia. Her eye muscles were damaged from the tumor, causing the eye to drift inward and a surgery or surgeries will be needed to correct her eye. That could possibly this year. She will also have an echocardiogram to check on all functions of her heart, again because of the chemotherapy she received. Delaney has been receiving physical therapy once a week and will now begin occupational therapy, to name a few, she will to begin work on her fine motor skills, dressing herself, buttoning clothes, and working out small tremors in her hands, which may be due to the double vision she sees because of her esotropia. Delaney will also have another MRI of her full brain and spine in the beginning of March, we are still waiting on a date. The stress and anxiety are slowly mounting. But more importantly, all in all, things are still progressing in a positive direction. Which we are truly blessed for. Honestly. Delaney fills the rest of her days with laughter, love, and smiles. Playing with her brothers, family, and crafting. Delaney loves being an older sister watching out for and caring for her little 9 month old brother Valen. She also made it out to a Monster Truck Jam. And she sure did love it! Thank you for all the prayers, love, and support. As always....... GO TEAM DELANEY!!!!!!
<br><br>
"And though she be but LITTLE, she is FIERCE!"
<br><br>
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Exactly 1 year ago today, Delaney received her second autologous bone marrow transplant. Above is a picture from a year ago and one from today. The pictures speak for themselves and we are blessed to where we are today from a year ago. On this day, Delaney, for the second time, received her own stem cells back that were taken from her by a apheresis machine, and preserved. After each round of aggressive chemotherapy at UCSF, the bone marrow transplant would take place, using those very stem cells to give back to Delaney, to "rescue" herself, and earning another birthday. The chemotherapy she received was too much for Delaney's little body to recover from. Yet again Mommy and Daddy continued with the tradition of a bone marrow transplant, singing happy birthday to Delaney with tears in their eyes while she lay sleeping in her hospital bed. As many of you know Delaney is still immunosuppressed, that being said Delaney has been fiercely fighting off a cold for about a week now. She is trying to shake it off, but being immunosuppressed makes it just that much more difficult. She is very happy and playful with her brothers and is getting better slowly. We are thankful beyond words. Thank you for all the prayers, love, and support. As always...... GO TEAM DELANEY!!!
<br><br>
Happy Birthday Delaney, we love you.
<br><br>
"And though she be but LITTLE, she is FIERCE!"
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhsdqJK6Kjx611emTQmF3PZ4jDw_bUIUHk5_SD6UBRetj150iEdao8UZats6RR8nEQHuOCPuikin1XJrJ2rPnpGxmTvEU5yyefHr9aKcnCVsRvWJnG7oLSrgFqz5XUxxH-ZOExmO7SAZGs/s1600/d486.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhsdqJK6Kjx611emTQmF3PZ4jDw_bUIUHk5_SD6UBRetj150iEdao8UZats6RR8nEQHuOCPuikin1XJrJ2rPnpGxmTvEU5yyefHr9aKcnCVsRvWJnG7oLSrgFqz5XUxxH-ZOExmO7SAZGs/s400/d486.jpg" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjokWQFjDo8xHjdovYAvjfMY5SBtOWwZpOCEKiMtMFjRj3OfqC-oKVC0oJoqkkp8gisXgI1SQPlmqOAjO2NepVwdKM7JUUv4iNWpUXP6ONRzg1YeNCdnjs6TwaI87XrKh_NJt1LroNnbqs/s1600/d487.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjokWQFjDo8xHjdovYAvjfMY5SBtOWwZpOCEKiMtMFjRj3OfqC-oKVC0oJoqkkp8gisXgI1SQPlmqOAjO2NepVwdKM7JUUv4iNWpUXP6ONRzg1YeNCdnjs6TwaI87XrKh_NJt1LroNnbqs/s400/d487.jpg" /></a></div>Team Delaneyhttp://www.blogger.com/profile/11970319706871986429noreply@blogger.com0tag:blogger.com,1999:blog-2087089336443391856.post-62041499589320969562015-01-14T09:07:00.001-08:002015-01-14T09:07:38.778-08:00 Disney Dollars for Delaney..
Delaney is starting off the new year happy, healthier and strong. Delaney continues to smile big and bright, all the while, doing the best she can to make up for lost time in her childhood and overcome her daily challenges. Early last year, Granada High School started "Disney Dollars for Delaney". A collection of funds to help send Delaney to Disneyland. This fund was started by the students, faculty, staff, and community because one of the first things Delaney was able to verbalize, 2 weeks after her brain operation (because the operation took away her ability to talk) was that she wanted to go to Disneyland. That being said, because of the big hearts and efforts of the students, faculty, staff and community of Granada High School, Delaney was able to go to Disneyland last week. Delaney enjoyed every minute she was there! Laughing, smiling, and creating new, powerful, lasting memories with the family. On the happiest place on earth, of course. Thank you, to all who helped make that possible for Delaney and the family. There were many highlights from the trip, but one was very emotional for mommy and daddy. As Mommy and Daddy continue to work very hard with Delaney on every meal, on the way back from Disneyland we stopped at In-N-Out Burger. We knew it would be a long shot to try and get her to eat, but we tried anyway. At first Delaney was adamant that she did not want any food, and then at the last second she asked for a grilled cheese sandwich, and of course we followed up, asking her if she would like a milkshake also. And she said yes. The food came and the real challenge was in front of her. First she tried the milkshake, she smiled big, then followed by a nibble on the grilled cheese, and then another and another. Then back to the milkshake. The smile she had on her face was so beautiful, and she kept repeating "I like this sandwich!", "I like this sandwich!" We savored those moments, simply watching her eat the grilled cheese, burned into our memory forever. When she was done she ate nearly the entire grilled cheese and all but a few sips of her milkshake, by far this was the most food she consumed in one sitting. It was a good time for Delaney and the family to heal, get some "normalcy" back, and enjoy being together. Little Miss Fierce, keeps working hard every minute of everyday. Thank you for all the prayers, love, and support. As always..... GO TEAM DELANEY!!!!
<br><br>
"And though she be but LITTLE, she is FIERCE!"
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The picture is painful to view, and brings back a flood of bad memories. However, the picture also shows a Fierce Fighter, and tells a story of pain, struggle, strength, determination, and love. Exactly 1 year ago today, Delaney received her first autologous bone marrow transplant. On this day Delaney received her own stem cells back that were taken from her by a apheresis machine, and preserved. After each bone marrow transplant those very stem cells were given back to Delaney, to "rescue" herself, earning another birthday. The chemotherapy she received was too much for the body of a child. And with the tradition of a bone marrow transplant, Mommy and Daddy softly sang happy birthday to Delaney while she lay in the hospital bed. Delaney has come so far in just one year, and again the most recent picture speaks for it's self. We are thankful beyond words. Thank you for all the prayers, love, and support. As always...... GO TEAM DELANEY!!!
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Happy Birthday Delaney, we love you.
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"And though she be but LITTLE, she is FIERCE!"
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhZHch2eW6HwBhhkpGZOEGayL8Z0iMesDnth3nmk2AhNZQyJxOIbbZ0gv0VOJB2F0lvowEdkj5xPdSr2Qz4LAQYBWICfhDER0PO-4Rzirop6bZrjEEx4WDhmwUpY94RP7tkUJfI-Vatl84/s1600/d479.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhZHch2eW6HwBhhkpGZOEGayL8Z0iMesDnth3nmk2AhNZQyJxOIbbZ0gv0VOJB2F0lvowEdkj5xPdSr2Qz4LAQYBWICfhDER0PO-4Rzirop6bZrjEEx4WDhmwUpY94RP7tkUJfI-Vatl84/s400/d479.jpg" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2t98wmN6aqjGnYaN108su6230MUyhXJkuMWP6_Hufi_JhC1BJRSQGiyfhcYuzT4XjJw7UHAb4JSwRDnJX8tQ222zxegzLtCSxNN6My7UekvzhzhlP8Z4loa7tIdzy4UfLPRyUu4K7k5Q/s1600/d480.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2t98wmN6aqjGnYaN108su6230MUyhXJkuMWP6_Hufi_JhC1BJRSQGiyfhcYuzT4XjJw7UHAb4JSwRDnJX8tQ222zxegzLtCSxNN6My7UekvzhzhlP8Z4loa7tIdzy4UfLPRyUu4K7k5Q/s400/d480.jpg" /></a></div>Team Delaneyhttp://www.blogger.com/profile/11970319706871986429noreply@blogger.com0tag:blogger.com,1999:blog-2087089336443391856.post-75555248138443107432014-12-15T16:17:00.000-08:002014-12-15T16:17:33.877-08:00 Delaney Continues To Amaze Us........
The appointments continued into this week at Oakland Kaiser and UCSF. Mommy and Daddy were able to go over the MRI images in person with Delaney's neuro-oncologist at Oakland Kaiser, along with the next steps and or phases of Delaney's recovery. Delaney will have another MRI scan in 3 months, the beginning of March to be exact, this will be a milestone because after that scan, Delaney's MRI scans will move out to once every 4 months for a year, instead of every 3 months. Furthermore she will meet with a multi disciplinary team of doctors annually to follow her in her recovery. This is to track any adverse effects to Delaney's body from the chemotherapy and radiation, then to manage those side effects. The appointment went very well, Delaney continues to move forward in recovery, in a positive direction. On to UCSF. At UCSF it was reiterated to Mommy and Daddy that Delaney still has a suppressed immune system and it is sensitive. Although her blood counts and blood chemistry have begun to stabilize it will take more time before they reach a normal level, that being of a child that has not received chemotherapy or radiation. During the appointment there was a diamond in the rough to be had, we are so thankful of certain things, in a horrible situation. That being Delaney's hearing. She has normal hearing and the bone marrow transplant doctor continued to explain that in all of his time, and the high dose of Carboplatin (a chemotherapy drug) Delaney has received, he has never seen a child keep all of their hearing. Most all have a significant loss or decrease in hearing. He said it was simply amazing. Furthermore they have released Delaney to receive "dead" vaccinations once again. And today Delany received 6 separate vaccination shots, another step in the road to recovery. We as a family are so thankful for the new health of Delaney and our family. Also the amazing news on Delaney's MRI and prognosis, an early Christmas gift for Mommy and Daddy that cannot be put into words. Lastly, Thank you. Thanks to each and everyone of you, who continue to follow and support Delaney. Thank you for all the prayers, love, and support. As always ...... GO TEAM DELANEY!!!!!
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"And though she be but LITTLE, she is FIERCE!"
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhwj0fPgEI5YQOfM2byX8wkYlixeudt6_3IwdshQgZla3yYKUvbgISutHoRIBQFcncLJ0hW0F0Yedp33t7Z40b3syh6Ab29giKo56cpZTrsHusp-t9PEb0oDjRfYQX5cSE1zSnVRUYvq_E/s1600/d469.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhwj0fPgEI5YQOfM2byX8wkYlixeudt6_3IwdshQgZla3yYKUvbgISutHoRIBQFcncLJ0hW0F0Yedp33t7Z40b3syh6Ab29giKo56cpZTrsHusp-t9PEb0oDjRfYQX5cSE1zSnVRUYvq_E/s400/d469.jpg" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhW3e666DCEJTnsVARJmhKIWfqTVqw1PTylOLgkuyUYEl9iTOyCaIA6IPNzk30c0jB1_tR0aWqwia5iXhoRjtMu8R1cj8bh1E0IKuk9OPpVz8HhbdO0b3Fjk_smwHh8dVJ8ltPop7a2d1w/s1600/d470.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhW3e666DCEJTnsVARJmhKIWfqTVqw1PTylOLgkuyUYEl9iTOyCaIA6IPNzk30c0jB1_tR0aWqwia5iXhoRjtMu8R1cj8bh1E0IKuk9OPpVz8HhbdO0b3Fjk_smwHh8dVJ8ltPop7a2d1w/s400/d470.jpg" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZ4DLeC0BFZqBfPB9McLKtqPwqSU0J6FgwaeNAdAByIHCLfhPgCunjCHj9RuEwyoRGWo4PGF71UH79xCmRPzEO-SzeZtP-EXya9RDFUTERM4TJld7f3oENA8ln5j0X30UwemLuFyOK_DY/s1600/d472.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZ4DLeC0BFZqBfPB9McLKtqPwqSU0J6FgwaeNAdAByIHCLfhPgCunjCHj9RuEwyoRGWo4PGF71UH79xCmRPzEO-SzeZtP-EXya9RDFUTERM4TJld7f3oENA8ln5j0X30UwemLuFyOK_DY/s400/d472.jpg" /></a></div>Team Delaneyhttp://www.blogger.com/profile/11970319706871986429noreply@blogger.com0tag:blogger.com,1999:blog-2087089336443391856.post-984438093345935962014-12-05T08:12:00.000-08:002014-12-05T08:12:25.334-08:00MRI is clear!!!!!
We are very blessed. It has been a very stressful week for the family. Thank you for all the prayers, love and, support.
As always..... GO TEAM DELANEY!!!
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgwjJR2fE8_M6nRRqOoBfhhQ1f-MM_R3BzKxE2-3momTvACDPzRCgorI0cbYtwfqTsyD8BsTANAGIdcAJp-P8rOylhTWEB8ZKBhtoUq08P84dPBbMotKNIg2z3ASkenr6bXUywprpNiG_0/s1600/d467.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgwjJR2fE8_M6nRRqOoBfhhQ1f-MM_R3BzKxE2-3momTvACDPzRCgorI0cbYtwfqTsyD8BsTANAGIdcAJp-P8rOylhTWEB8ZKBhtoUq08P84dPBbMotKNIg2z3ASkenr6bXUywprpNiG_0/s400/d467.jpg" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgZx_h7BCBO7miM93nMvh2gcEbrBUfRNRNTsY6z7jwowBjnkxpTp0aatf6q3xNDMnVmlTjX0Kpb0LEnoBNJkAChR3AsoZK8GJuFVWztPAtVih9P_f73lig2wjpj8vhva3uE05YgttTVYIc/s1600/d468.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgZx_h7BCBO7miM93nMvh2gcEbrBUfRNRNTsY6z7jwowBjnkxpTp0aatf6q3xNDMnVmlTjX0Kpb0LEnoBNJkAChR3AsoZK8GJuFVWztPAtVih9P_f73lig2wjpj8vhva3uE05YgttTVYIc/s400/d468.jpg" /></a></div>Team Delaneyhttp://www.blogger.com/profile/11970319706871986429noreply@blogger.com0tag:blogger.com,1999:blog-2087089336443391856.post-22457165660411345152014-12-03T10:45:00.000-08:002014-12-03T10:45:24.334-08:00Delaney is set to have yet another MRI this Thursday, December 4, at 8am.
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It will have already been 3 months from her last MRI. That being said, the almost uncontrollable wave of emotions, stress, anticipation, and anxiety, are real and weighing heavy on our minds. Just the thought of entering the hospital with Delaney is hard enough. However, we will always remain optimistic, positive, and steadfast. We follow Delaney's lead as usual, with a fierce glimmer in her eyes and a big smile on her face, that is all we need to see. Delaney continues to improve in all areas of her daily challenges, well enough, we have begun potty training once again, picking up where we left off 14 months ago. As we all continue to recover emotionally and physically, our house feels more alive and happy again, and just from the simple joy of seeing our children being able to play with one another and have a childhood. With much love, we thank you all for the continued prayers, love and support. As always..... GO TEAM DELANEY!!!
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"And though she be but LITTLE, she is FIERCE!"
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhs4NZGYDp-Ngf8dzx6WdzZiwYCZI55an0v59uu0AMFDWLJgsj9CT12T4fST_upoGAKkAqmAUH7W0AmerETNm7kk4Penkr4DxICY3NNq2uJp0X-uRiB_vkLJ2jg5gBEG0XkHoKBliyrIM4/s1600/d464.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhs4NZGYDp-Ngf8dzx6WdzZiwYCZI55an0v59uu0AMFDWLJgsj9CT12T4fST_upoGAKkAqmAUH7W0AmerETNm7kk4Penkr4DxICY3NNq2uJp0X-uRiB_vkLJ2jg5gBEG0XkHoKBliyrIM4/s400/d464.jpg" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg8aBpoVkwUORgL2yGGSe1h62_5TSprjIgsW8Qk6074IKPKCDlbSdvuyph6MhQz9bCxj9mfu6u5lTGGrblQVGl5gxGD1IKyP6unGFDtI8j46KCZW1qyEC3OILzUeLiJ_PY8rw6QA0D6aHs/s1600/d465.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg8aBpoVkwUORgL2yGGSe1h62_5TSprjIgsW8Qk6074IKPKCDlbSdvuyph6MhQz9bCxj9mfu6u5lTGGrblQVGl5gxGD1IKyP6unGFDtI8j46KCZW1qyEC3OILzUeLiJ_PY8rw6QA0D6aHs/s400/d465.jpg" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiBb4wX6juHpxbKzX7fcFA6NixKgGXNMzRzml2Cwf9XaZrK_kajdbBru7IMwAElIbimq8zxdvnpQT6UbDFxLZokFjh1caAUYGXCe9Qcn3cwgcAb2VmAgoiBjCamXvX7L-OygMkAUmbvsvM/s1600/d466.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiBb4wX6juHpxbKzX7fcFA6NixKgGXNMzRzml2Cwf9XaZrK_kajdbBru7IMwAElIbimq8zxdvnpQT6UbDFxLZokFjh1caAUYGXCe9Qcn3cwgcAb2VmAgoiBjCamXvX7L-OygMkAUmbvsvM/s400/d466.jpg" /></a></div>Team Delaneyhttp://www.blogger.com/profile/11970319706871986429noreply@blogger.com0tag:blogger.com,1999:blog-2087089336443391856.post-83956405395261102942014-11-14T16:03:00.000-08:002014-11-14T16:03:53.507-08:00 Smiles, smiles, smiles.
It has been a very, very, long, exhausting, emotional, and difficult year. Yet it remains a year that cannot be put into words. However, there were, and still are, two constants. Those two constants have been ever so profound in Delaney's character and those are her fierceness and most importantly her ability to smile in the most horrible of circumstances. As many of you have seen and probably agree with. Each day, she smiles brighter and bigger, reminding us, as a family, to seek out the positives in any circumstances, because the negativity can bring you down. It is interesting how much we can learn form a 3 year old child. There are two other little victories that Delaney has had since her last post, pertaining to her vision and hearing, where she had a 6 month post treatment follow up for both. Even though she has strabismus in her left eye, caused from the pressure of the tumor, Delaney has 20/20 vision. This is not always the case. And Delaney's hearing remains unaffected from the aggressive amounts of chemotherapy and radiation. Furthermore, Delaney is physically getting stronger, walking and playing. As for her eating, it is still a daily challenge, but the aversion to eating is losing its grip, as Delaney fiercely pushes forward. December 4th marks yet another day for another MRI. 3 months will have passed already since her last MRI. We thank each of you for continuing to walk with Delaney and our family through this journey. Thank you for all the prayers, love, and support. As always ..... GO TEAM DELANEY!!!
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"And though she be but, LITTLE she is FIERCE!"
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No matter what challenges Delaney faces daily, she continues to make progress in all areas of her young life. Yesterday, Delaney had a doctors appointment with her pediatrician, for a thorough exam and to receive her 2nd flu shot. Thankfully her T-Cells are functioning well enough for her to receive her 1st flu shot 30 days ago, and the 2nd yesterday. Delaney's immune system is very fragile and must be treated as though she is a newborn. Delaney's weight is on track and has leveled at around 30 1/2 lbs. range, she is in the 50th percentile for her weight. She in trying more foods and had 1/2 of a hot dog the other day, a big step for her. As for Delaney's motor skills, she, for the most part is walking unassisted through out the house, playing with her brothers, but Mommy and Daddy can see the pride beaming from her face when she gets things out of the refrigerator, or throws trash away, it is the independence she feels, having been dependent for so long. Delaney is making brief trips out of the house, going to the pumpkin patch, walking downtown, and visiting Daddy at work. Most importantly we are able to spend time as a family, doing little things together. We can not be thankful enough for everyone's support, that being said, thank you, for all of the continued support, love, and prayers for our daughter Delaney, they are truly appreciated. As always..... GO TEAM DELANEY!!!
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"And though she be but LITTLE, she is FIERCE!"
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Things continue to move in a positive direction for Delaney, all the while she works hard each and everyday, not letting the set backs or challenges get the best of her or us. Delaney is getting stronger, happier, and healthier everyday. We are all so thankful, and blessed to see how far she has come. It makes Mommy and Daddy's hearts so happy to see her enjoying life, as she should, as a child without a care in the world, and not being sick. The mental scars and healing continue, and this was apparent while Delaney was on her Make A Wish trip to Disneyland. As we pulled into the cement parking structure at Disneyland, immediately and without hesitation Delaney said "We are at Doctors?" Which we replied "No baby girl, we are at Disneyland!" This was because the parking structure reminded her of where she received radiation for, for 28 days. This conversation of reassurance continued for a couple of minutes, but there was no convincing Delaney. It was hard and sad for Mommy and Daddy to hear Delaney say that. However, we as a family are beginning and tying our best to push out the horrible, bad memories, and replace them with new, happy, joyful memories. It will take time but we will get there.
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Thank you for all the prayers, love, and support. As always.... GO TEAM DELANEY!!
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"And though she be but LITTLE she is FIERCE!
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Yesterday was the mark of yet another milestone. Delaney's home health nurse came by for the last time yesterday, for a health evaluation and weight check on Delaney. It felt like this day would never come. Delaney has received care from the same nurse for nearly one year, every single week and at times, up to 3 times per week. She was there to answer calls at all hours of the day or night, (even at 11pm when Delaney threw up her feeding tube, that she needed for medication and formula). She was there to provide detailed loving nursing care, clarity in confusion, and simply said, she does a job that is a difficult one, to say the least, and one that can only be done by a few. It is not goodbye, just the start of a new chapter. Thank you Rosie. For your care for Delaney, we love you. Little Miss Fierce 's weight is up again another 1.5 oz, a total weight increase of 3oz in a little over a week. She now weighs 30lbs. 12oz. We are very proud of Delaney and her hard work to eat food again. Next, because of the possible side effects from the brain operation, chemotherapy, and radiation Mommy and Daddy set up an evaluation with the Livermore School District for Delaney. This evaluation is a proactive approach to make sure Delaney is on track or remains age appropriate for schooling, and if necessary, to find out what early education resources are available to her. The evaluation was performed by a team from the school district, specializing in many different areas of cognitive development. Upon leaving we were happy and thankful to hear that things seem on track, except for the obvious physical setbacks. We will meet with the team again at the end of the month to go over their findings in detail. Delaney is doing great, she is very happy playing with her brothers, and gaining more of her childhood back each day. She has come so far and in a horrible situation Mommy and Daddy are so very thankful for the outcome all the positive progress she is making. Thank you for all the prayers, love, and support. As always.... GO TEAM DELANEY!!!
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"And though she be but LITTLE, she is FIERCE!"
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"And though she be but LITTLE, she is FIERCE!"
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEifuNtKcDMr6P39Y6YZ40LvuHZkBM6T8X93K7HoE_GZg26MvUhA9qvx9wFQ7kXKzZnL-XrahDdcRXxK6f0HB_ckoew3eUk_RfImxb2kONlfwOq1SYyl_7hsVEXmKI9EAfvtpuj3mc1G1a4/s1600/d441.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEifuNtKcDMr6P39Y6YZ40LvuHZkBM6T8X93K7HoE_GZg26MvUhA9qvx9wFQ7kXKzZnL-XrahDdcRXxK6f0HB_ckoew3eUk_RfImxb2kONlfwOq1SYyl_7hsVEXmKI9EAfvtpuj3mc1G1a4/s400/d441.jpg" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhYeKr3ZrYxaDCVvYK4Hp-DY7RQX1cYfsuLtQYhKHYSDNg3rdNGN3YFaMK-n4fI9QIEyXr09V9HpBHMHeKrVC9t2-_HoyRAd8uo0-FOK0m9O-VN7bM6Li6YcK0Tu_gtYSWk3qsK5NODEK8/s1600/d442.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhYeKr3ZrYxaDCVvYK4Hp-DY7RQX1cYfsuLtQYhKHYSDNg3rdNGN3YFaMK-n4fI9QIEyXr09V9HpBHMHeKrVC9t2-_HoyRAd8uo0-FOK0m9O-VN7bM6Li6YcK0Tu_gtYSWk3qsK5NODEK8/s400/d442.jpg" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgV_am28omuogMzlck9FSKoe4j_liN09bPWVe1qoJcJfxZU41kJSaLKY-O4OGwAUbvKYek0ZjO1dNbzRuvVWdEft8iL2cvvkDQSIo6bDQW8iO2uHDvZVDv4i957aPjrhgBRoPzUl6gCts4/s1600/d443.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgV_am28omuogMzlck9FSKoe4j_liN09bPWVe1qoJcJfxZU41kJSaLKY-O4OGwAUbvKYek0ZjO1dNbzRuvVWdEft8iL2cvvkDQSIo6bDQW8iO2uHDvZVDv4i957aPjrhgBRoPzUl6gCts4/s400/d443.jpg" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjrOSq3xF1d1QewNntnOjUGx0YIMMZLiLM01BBKTeygRTH6CyNNQN4qahIbMcMYGjHO8k5CJNvLMuUVLcf_3nY69QMUiSmY3cA32oOf2XF8FhRRN8IWWK57MRl3c5F8IgQyC0RVI6Oo7oo/s1600/d444.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjrOSq3xF1d1QewNntnOjUGx0YIMMZLiLM01BBKTeygRTH6CyNNQN4qahIbMcMYGjHO8k5CJNvLMuUVLcf_3nY69QMUiSmY3cA32oOf2XF8FhRRN8IWWK57MRl3c5F8IgQyC0RVI6Oo7oo/s400/d444.jpg" /></a></div>Team Delaneyhttp://www.blogger.com/profile/11970319706871986429noreply@blogger.com0tag:blogger.com,1999:blog-2087089336443391856.post-84237563855777616212014-09-27T07:41:00.001-07:002014-09-27T07:41:36.024-07:00Team,
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Team Delaney has partnered with Mamas Night Out - A Benefit to Unravel Pediatric Cancer for an amazing event in Livermore. For each ticket purchased using " Team D" promotion code during your check out $20 dollars will go to Delaney for her recovery and therapy.
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Saturday, October 18, 2014
5:00 PM to 11:00 PM
The Barn
3131 Pacific Ave
Livermore, CA 94550
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A little bit about Unravel Pediatric Cancer...
Unravel is a nonprofit organization working to spread knowledge about the grim realities of pediatric cancer and the devastating impact from the lack of funding. We supply the information, tools and support to individuals and communities that want to help create change– because good people want to do good things but sometimes they need help getting started. All monies raised by and for Unravel will go directly to the fight against pediatric cancer.
http://unravelpediatriccancer.org/
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To purchase tickets click on link below.
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http://www.eventbrite.com/e/mamas-night-out-a-benefit-to-unravel-pediatric-cancer-tickets-12728271603?aff=es2&rank=3
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"And though she be but LITTLE, she is FIERCE!"
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgcPIsn2u3cYJn06Xh3ZwH6HZk-QmCIjV0QPmm0ev1ao-Us8FgLTifpETw0X4-zK7LmgrGNGKYc1eMIpoWnvdjzYA43PFoaU0Di_7bJ2Pt7Ujg31GZRBUQZjMI3bQph0SxT5U-C1k2E0jw/s1600/teamd.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgcPIsn2u3cYJn06Xh3ZwH6HZk-QmCIjV0QPmm0ev1ao-Us8FgLTifpETw0X4-zK7LmgrGNGKYc1eMIpoWnvdjzYA43PFoaU0Di_7bJ2Pt7Ujg31GZRBUQZjMI3bQph0SxT5U-C1k2E0jw/s400/teamd.jpg" /></a></div>Team Delaneyhttp://www.blogger.com/profile/11970319706871986429noreply@blogger.com0tag:blogger.com,1999:blog-2087089336443391856.post-39284362808166342062014-09-12T08:16:00.001-07:002014-09-12T08:16:52.065-07:00On This Fierce Friday, It has been one year to day, that Delaney was at Oakland Kaiser, and already headed down for a 12 hour brain operation to remove a tumor, measuring 4cm X 5cm.
The operation was a success it was a 100% gross resection, we are so blessed and thankful. The resection was Delaney's biggest first step in her Fierce Fight. Later only to find out it was cancerous, and she was diagnosed with medulloblastoma. A nationally recognized protocol for treatment was to follow; 3 rounds of chemotherapy at Kaiser Oakland, 3 triple tandem chemotherapy treatments with 3 autologous bone marrow transplants and 28 days of focal radiation. Yes, the MRI is ugly, and brings about unexplainable emotions and memories for Mommy and Daddy, but it is an ugly truth, a truth that Delaney and other children are faced with, without choice, fiercely fighting for life.
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Delaney's feeding tube has been out for almost 7 weeks now. Delaney is working very hard on her eating, it still remains challenging for her, Mommy and Daddy. Delaney has many, many challenges she still faces on a daily basis. We will continue to follow Delaney's lead, fiercely moving forward, on the slow road to recovery. Again we cannot thank each of you enough for all of the support you have give Delaney and our family. Thank you for all the prayers, love and support. As always.... GO TEAM DELANEY!!!!!
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"And though she be but LITTLE, she is FIERCE!
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhc6VaunqhHyiHTQx3Mg8HoPLUQ2CEepjcVi8gNNT4qdSLE4EQ77wlRT_qP0OM7xLRonWbwSClM8BQSpPJStSDD75DPFCglNCh95bGIHswQ4lq-AVC1xqUpTJ4KPaS1P_97-Si64Dot8Ik/s1600/d437.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhc6VaunqhHyiHTQx3Mg8HoPLUQ2CEepjcVi8gNNT4qdSLE4EQ77wlRT_qP0OM7xLRonWbwSClM8BQSpPJStSDD75DPFCglNCh95bGIHswQ4lq-AVC1xqUpTJ4KPaS1P_97-Si64Dot8Ik/s400/d437.jpg" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgrNY1yOk-SUIIn6EfQYJrBqabX5DyG1A-V_3ytlfevAqbLmm-DSYJYxE286pFCdRBBQBaf-f5eCxX6D7LrdECd6SHKhw5DV7wU_HmxNow8tqJGBwMW9hUcis_0YfZL8iOG46Rfd6cvtHA/s1600/d438.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgrNY1yOk-SUIIn6EfQYJrBqabX5DyG1A-V_3ytlfevAqbLmm-DSYJYxE286pFCdRBBQBaf-f5eCxX6D7LrdECd6SHKhw5DV7wU_HmxNow8tqJGBwMW9hUcis_0YfZL8iOG46Rfd6cvtHA/s400/d438.png" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiOg_AtmAiDazUAFUFi3DGtWaKbcbLvgTrjKA4DtKwPvhy37_n4KVAPGjCFmB6sauKuJucYlfqKhIdKc-XZD531x-jB-1a6LKCS4gc6Xtq_1QK8wJ7vMKdsDMouaVbtzU8Qq96RQWubGkc/s1600/d439.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiOg_AtmAiDazUAFUFi3DGtWaKbcbLvgTrjKA4DtKwPvhy37_n4KVAPGjCFmB6sauKuJucYlfqKhIdKc-XZD531x-jB-1a6LKCS4gc6Xtq_1QK8wJ7vMKdsDMouaVbtzU8Qq96RQWubGkc/s400/d439.jpg" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjoTHxINly0NBW5JJvIrJnVkpK5hvmiL9AJhlTnFjt_ffiTVC8BxUG_-Od1nS29BJGfvfgStB_tKDTfrzsiKtcyePPZksJcH2Vpjhm2Bw0cpVdq7ZxHri3c8VqRnPO1u7Mgn4iITEQyVe4/s1600/d440.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjoTHxINly0NBW5JJvIrJnVkpK5hvmiL9AJhlTnFjt_ffiTVC8BxUG_-Od1nS29BJGfvfgStB_tKDTfrzsiKtcyePPZksJcH2Vpjhm2Bw0cpVdq7ZxHri3c8VqRnPO1u7Mgn4iITEQyVe4/s400/d440.jpg" /></a></div>Team Delaneyhttp://www.blogger.com/profile/11970319706871986429noreply@blogger.com0tag:blogger.com,1999:blog-2087089336443391856.post-88799594186599339842014-09-11T15:44:00.001-07:002014-09-11T15:44:45.524-07:00This month Team Delaney - Home Page will be going gold to support Delaney and Childhood Cancer. Join Delaney and others like her fight this battle by going gold.
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"And though she be but LITTLE, she is FIERCE!"
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiv4XUe1UdBGyoAbzvxSdgQ4qmzjXroCxnzPd2Yx-opgKD1x6unlcLp-lPpgWlXuLqBugDCW4b1IprLpsbUcSStJKA8cHTRsAFZR37qxVD5yQQ2PB9tSiboLgTBApQGnLrWXyZ-kXQICew/s1600/going+gold.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiv4XUe1UdBGyoAbzvxSdgQ4qmzjXroCxnzPd2Yx-opgKD1x6unlcLp-lPpgWlXuLqBugDCW4b1IprLpsbUcSStJKA8cHTRsAFZR37qxVD5yQQ2PB9tSiboLgTBApQGnLrWXyZ-kXQICew/s400/going+gold.jpg" /></a></div>Team Delaneyhttp://www.blogger.com/profile/11970319706871986429noreply@blogger.com0tag:blogger.com,1999:blog-2087089336443391856.post-28946996225973844382014-09-08T16:42:00.001-07:002014-09-08T16:42:56.998-07:00 365 Days of Fierce, and Counting!
Exactly 1 year ago today Delaney was admitted to the hospital and her FIERCE Fight began. Just a few days later Delaney would endure a 12 hour successful brain surgery followed by an aggressive treatment plan that included 6 rounds of chemotherapy, 28 days of focal radiation, MRIs, blood transfusions, stem cells, and so much more that no child should ever have to experience. As challenging and hard as it was for Delaney, she is now, as of today, 98 days Cancer Free!
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We could not have done it without the support of family, friends, strangers now friends, communities around the country, businesses, nonprofits, co-workers, fundraisers, doctors, nurses, 4,500 plus Fierce Friday shirts, and of course the countless prayers and support we continue to see for Delaney. We are truly blessed to have our daughter surrounded by so many loving and caring people.
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"And though she be but LITTLE, she is FIERCE!"
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https://www.youtube.com/watch?v=H4oMkYLh0AQTeam Delaneyhttp://www.blogger.com/profile/11970319706871986429noreply@blogger.com0tag:blogger.com,1999:blog-2087089336443391856.post-30844519419618248262014-09-08T16:41:00.001-07:002014-09-08T16:41:14.719-07:00MRI Clear!!!
We received Delaney's MRI results this afternoon and she remains cancer free with no evidence of tumor! The wait for the MRI results feel crippling, making it hard to get through the day, but receiving such amazing news is a blessing, and makes it all go away. With a hug and a kiss to Delaney from Mommy and Daddy, and telling her, "I Love You." It is in these moments we are thankful for the innocence of a young child, to live life each day, perhaps not fully understanding exactly what is going on. Thank you for all the prayers, love and support. As always... GO TEAM DELANEY!!!
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"And though she be but LITTLE, she is FIERCE!"
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhjJpAdtqXd7vbC8vPEosWmZtPFyRkxXAufFvjsKLfoAdPYna_kBTpt9w8bKigJ5UYHTC_PqODaNfBaL0kOiDXpuZV3suIdftwNhRYrllYAxfL5dLewYzJjXvX7Rt9MgDB6PpQFxEA9vqo/s1600/d435.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhjJpAdtqXd7vbC8vPEosWmZtPFyRkxXAufFvjsKLfoAdPYna_kBTpt9w8bKigJ5UYHTC_PqODaNfBaL0kOiDXpuZV3suIdftwNhRYrllYAxfL5dLewYzJjXvX7Rt9MgDB6PpQFxEA9vqo/s400/d435.jpg" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgJ8UlH-rwtkUkyRySTKMFgPbOdDnlQWj6iKJ7aTyc0PHKJKA-GgmXXTdpU5PpdkOJFf8RfN03vEeoWGsBtZ1xirpMza2loM8Ccjfbl5xeg4YS7ksEezrs1Ch5zU200xnzjfpPKNtEtm7A/s1600/d436.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgJ8UlH-rwtkUkyRySTKMFgPbOdDnlQWj6iKJ7aTyc0PHKJKA-GgmXXTdpU5PpdkOJFf8RfN03vEeoWGsBtZ1xirpMza2loM8Ccjfbl5xeg4YS7ksEezrs1Ch5zU200xnzjfpPKNtEtm7A/s400/d436.jpg" /></a></div>Team Delaneyhttp://www.blogger.com/profile/11970319706871986429noreply@blogger.com0tag:blogger.com,1999:blog-2087089336443391856.post-18819005757930741142014-08-30T08:55:00.001-07:002014-08-30T08:55:40.488-07:00Delaney is just shy of a year (by two weeks) since she underwent a successful 12 hour brain operation to remove a tumor.
After the brain operation Delaney lost the ability to sit up, walk, talk, and eat, Delaney lost the ability to do everything. Even her vision was and is still effected. From that day forward Delaney has had to re-learn everything she already knew how to do. All the while battling the effects of chemotherapy and radiation. But she has worked fiercely to get where she is today. The road to recovery will be slow and long but Delaney puts a smile on each day working hard re-gain all that was lost. Delaney has had a busy week with feeding therapy, an appointment for an infusion to help her immune system recover, 2 weight checks, feeding tube still out, and physical therapy. Since Delaney did not have her Broviac she needed an IV placed in her hand, and Delaney did outstanding with the needle stick, with the help of Emla cream, used to numb her skin. At her weight check on Monday Delaney lost 1 1/2 pounds over 3 weeks. Then today at her weight check 4 days later she gained a 1/2 pound back. We hope that her weight is starting to stabilize. On Tuesday, September 2nd, Delaney will have another full brain and spine MRI. A day full of stress, anxiety, and unexplainable emotions. But as she has done before, just one look from Delaney and Mommy and Daddy are quickly reminded and filled with a fierce drive to do all we can to comfort her and keep her heathy and moving forward. Thank you for always thinking of our daughter, and family. Thank you for all the prayers, love and support. As always.... GO TEAM DELANEY!!!!
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"And though she be but LITTLE, she is FIERCE!"
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhxkFGUYwbhds_khQX3jnJX0T3J9uphq2oHOJ8LadrUBz4ziih0QMgPAFF8qh7_9vGCb5ZeeVeCZ7sRUS_DJAdYWY6-mu85r-gpQEQdw-Ywi7-ftNZRiICGcBtnzdkOBn9ZFovHUw7C5b4/s1600/d431.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhxkFGUYwbhds_khQX3jnJX0T3J9uphq2oHOJ8LadrUBz4ziih0QMgPAFF8qh7_9vGCb5ZeeVeCZ7sRUS_DJAdYWY6-mu85r-gpQEQdw-Ywi7-ftNZRiICGcBtnzdkOBn9ZFovHUw7C5b4/s400/d431.jpg" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiwkRVibvexQWQVZ1US7o22yq3uePhbzGq9RHkAMtYJXXYCfOvGOm7rqEuf1I_iAqBOpJ0ttHSv7nPbPDIjot5BdZy9ZTLfeOc7A6v_t1Bxrb98lMWUyyv6GmeeVOtpd8ZGjy1NV6qbwtY/s1600/d432.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiwkRVibvexQWQVZ1US7o22yq3uePhbzGq9RHkAMtYJXXYCfOvGOm7rqEuf1I_iAqBOpJ0ttHSv7nPbPDIjot5BdZy9ZTLfeOc7A6v_t1Bxrb98lMWUyyv6GmeeVOtpd8ZGjy1NV6qbwtY/s400/d432.jpg" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjs7DLtYRNY9IegUPeLN8fz6MOMXh26TGsnVHbiTYNRLN9uViFEVqlosmknorCIOKxVERUgltuW3Y3YQWeLrjUom4TLKtbYpofb4v8hoDazVWrSWXfkhnXWexpGG7U8galC-r_2lh7qyEY/s1600/d433.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjs7DLtYRNY9IegUPeLN8fz6MOMXh26TGsnVHbiTYNRLN9uViFEVqlosmknorCIOKxVERUgltuW3Y3YQWeLrjUom4TLKtbYpofb4v8hoDazVWrSWXfkhnXWexpGG7U8galC-r_2lh7qyEY/s400/d433.jpg" /></a></div>Team Delaneyhttp://www.blogger.com/profile/11970319706871986429noreply@blogger.com0tag:blogger.com,1999:blog-2087089336443391856.post-13638198865761882132014-08-19T07:56:00.001-07:002014-08-19T07:56:50.055-07:00Delaney's feed tube remains out!!
Just over 2 weeks now and Delaney's feed tube remains out.
Delaney has only lost 1/2 pound over the course of 2 weeks. A huge accomplishment for Delaney considering she has not eaten on her own for almost a year. Delaney is working extremely hard to try and eat, and every meal or snack is very challenging for her. Mommy and Daddy are right by her side encouraging her in every way, however, it is very stressful and an extreme amount of work, as we can not help but count every calorie, weigh every bite out in grams, and track all of her liquid intake. By doing so we hope to have the best understanding as to where she is getting the most of her calories or how to make up calories when she is lacking them. Also it is to continue to keep the feeding tube out. Delaney is still currently taking zofran an anti nausea medication twice per day. We have begun to taper this slowly so that she may be completely off medication in a few weeks. Delaney continues to be very active and happy. She has had more opportunities to go to the park and go swimming. Which we guess the pool feels good for her since she continues to regain her ability to walk. Delaney will not be weighed for week, unless there are some drastic changes in her eating and drinking habits. Thank you for all the prayers, love, and support. As always.... GO TEAM DELANEY!!!
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"And though she be but LITTLE, she is FIERCE!"
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It has been 8 days since Delaney's feeding tube was removed. Mommy and Daddy are thrilled to say the feeding tube remains out. However, it goes without saying that each day is a challenge, and a lot of hard work is put into each meal and snack. If you were to name a food or drink we can almost guarantee we have tried more than once and in 3 different ways. We have established a few "go to" foods and those include Danimals, yogurt, chocolate milk, juice boxes, grapes, Cheerios, and BBQ chips and all other food is hit or miss through out the day. There is a constant balance between re-affirming the consequences of not eating and encouraging and supporting each and every bite. Mommy and Daddy trying to make more time for Delaney to venture out but the fear of serious infection has been so deeply ingrained in us, it is a way of life that is not easily changed. For example when Mommy and Daddy took Delaney to park, Mommy essentially disinfected the entire play structure where Delaney was playing and where her hands would touch. It sounds unreal but we have had to live that way, even under our own roof for the past 11 months. As with everything that we do for Delaney it is a means to and end, a healthy happy child. Delaney remains happy, active and full of love. Thank you for all the prayers, love, support. As always...... GO TEAM DELANEY!!!
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"And though she be but LITTLE, she is FIERCE!"
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Delaney has been enjoying the simple things in life. Little things she has not been able to enjoy for the past 10 months and 23 days. Delaney has been able to take a handful of baths which she loves doing, at the same time Mommy and Daddy can see the look on her face, and it is as though she is playing in water for the first time again. All week long, little miss fierce, Mommy, and Daddy have been working hard on her feeding therapy, removing some of her formula through out the day in order to make her hungry. Then begins the work to try and get Delaney to eat or drink food on her own. She is doing well, Mommy and Daddy have been able to remove 1 formula push each day, replacing it with chocolate milk or milk. And tomorrow, Sunday, Delaney's feeding tube will be removed once again, to give her a break, allow her to have the sensation of eating without the hindrance of a feeding tube, and to continue to work on her feeding therapy. This week Delaney will have a speech evaluation to see if she has any set backs from the brain operation, chemotherapy, and or radiation. Delaney has ventured out of the house a few times for couple hours for walks, playing with the water hose, and recently to see just one of the many events people have come together to support her in her fight. Thank you. Thank you for all the prayers, love and support. As always..... GO TEAM DELANEY!!
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"And though she be but LITTLE, she is FIERCE!"
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Today, after 5 days, Delaney was finally able to take off the dressing the surgeon applied after he removed Delaney's broviac. Her site is healing up extremely well, although she still has skin discoloration about 4"x6", due to the chloraprep (used to help reduce bacteria on her skin that would cause infection) and the weekly dressing changes. But we know her skin color will return in time. Little Miss Fierce has been able to play with water once again. With her little brother Merlin, she was able to play with a water gun, water balloons, and simply play with water in a small bucket, without worry. It was so nice to see such a simple act of playing with water, bring so much joy. And finally, after 11 months, Delaney can can take a bath, a shower, or go swimming again. Her eating and food aversion have remained the same, but Delaney works hard everyday on her food therapy. Delaney's intense physical therapy is beginning once again, now that she has overcome some big hurdles this past month. Delaney remains in good spirtits and and is enjoying regaining some of her freedoms of a childhood agin. Thank you for all the prayers love and support. As always... GO TEAM DELANEY!
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"And though she be but LITTLE, she is FIERCE!"
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiy0tCcn4MaNiW-qMVMXmlcTKbZ6v2-jGSCFsenp2tnNdjmNqRXJaOauQ44f9x7Fep571z_W1pAqqSFCPp8dVL9scVsyH2_OoZafo0YEmY3ycBvCkF92ceot1G8j7BhG_rwpEcNRAkqqc4/s1600/d417.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiy0tCcn4MaNiW-qMVMXmlcTKbZ6v2-jGSCFsenp2tnNdjmNqRXJaOauQ44f9x7Fep571z_W1pAqqSFCPp8dVL9scVsyH2_OoZafo0YEmY3ycBvCkF92ceot1G8j7BhG_rwpEcNRAkqqc4/s400/d417.jpg" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj83BAkSL_E_FaEA0IzPz550X38GClQwU7BPA1YpfXy_8R9aA1Zk3wzhjJFmTpaxyenG7y1yhpH4VGgL5O2VQAyuRpauQ2hfkaBDEEy6tcf4BsuXMlZaYVECyHneNIdQIfatpaufztxv0Y/s1600/d418.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj83BAkSL_E_FaEA0IzPz550X38GClQwU7BPA1YpfXy_8R9aA1Zk3wzhjJFmTpaxyenG7y1yhpH4VGgL5O2VQAyuRpauQ2hfkaBDEEy6tcf4BsuXMlZaYVECyHneNIdQIfatpaufztxv0Y/s400/d418.jpg" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjbMGJdTQ4ksAD9URp-iohZIIFXC6yr4PKo221ml39ncC-YpAT7CbtmJs-FXWQdg2l0M-0BJb61HXsrNJtwxqs2uffYuH2472J8FiFqMpZF1H8HrcFRrpizvHFdrqFB1xwkBChAcJwV8w8/s1600/d419.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjbMGJdTQ4ksAD9URp-iohZIIFXC6yr4PKo221ml39ncC-YpAT7CbtmJs-FXWQdg2l0M-0BJb61HXsrNJtwxqs2uffYuH2472J8FiFqMpZF1H8HrcFRrpizvHFdrqFB1xwkBChAcJwV8w8/s400/d419.jpg" /></a></div>Team Delaneyhttp://www.blogger.com/profile/11970319706871986429noreply@blogger.com0tag:blogger.com,1999:blog-2087089336443391856.post-72342471907828945752014-08-02T11:01:00.000-07:002014-08-02T11:01:19.787-07:00Successful Surgery....
Both of Delaney's procedures went very well yesterday. Delaney's Broviac was removed and she had a lumbar puncture. Mommy and Daddy waited in the waiting room and then shortly after her surgeon came out and told us everything went well. He said he literally pulled the dressing off and the Broviac came with it. Now that the Broviac is out if Delaney spikes a fever she can be treated as a normal child, there is no risk of a central line infection, which would mean an ER visit and admission to the hospital until antibiotics are given and the fever is gone. Another huge close to a chapter in Delaney's story. Delaney is very happy that her Broviac is gone and she is so proud to show that they are gone! Thank you for all the prayers, love, and support. As always.... GO TEAM DELANEY!!
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"And though she be but LITTLE, she is FIERCE!"
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