Tuesday, August 19, 2014

Delaney's feed tube remains out!!

Just over 2 weeks now and Delaney's feed tube remains out. Delaney has only lost 1/2 pound over the course of 2 weeks. A huge accomplishment for Delaney considering she has not eaten on her own for almost a year. Delaney is working extremely hard to try and eat, and every meal or snack is very challenging for her. Mommy and Daddy are right by her side encouraging her in every way, however, it is very stressful and an extreme amount of work, as we can not help but count every calorie, weigh every bite out in grams, and track all of her liquid intake. By doing so we hope to have the best understanding as to where she is getting the most of her calories or how to make up calories when she is lacking them. Also it is to continue to keep the feeding tube out. Delaney is still currently taking zofran an anti nausea medication twice per day. We have begun to taper this slowly so that she may be completely off medication in a few weeks. Delaney continues to be very active and happy. She has had more opportunities to go to the park and go swimming. Which we guess the pool feels good for her since she continues to regain her ability to walk. Delaney will not be weighed for week, unless there are some drastic changes in her eating and drinking habits. Thank you for all the prayers, love, and support. As always.... GO TEAM DELANEY!!!

"And though she be but LITTLE, she is FIERCE!"

No comments:

Post a Comment