Thursday, January 22, 2015

Another milestone reached.....

Exactly 1 year ago today, Delaney received her second autologous bone marrow transplant. Above is a picture from a year ago and one from today. The pictures speak for themselves and we are blessed to where we are today from a year ago. On this day, Delaney, for the second time, received her own stem cells back that were taken from her by a apheresis machine, and preserved. After each round of aggressive chemotherapy at UCSF, the bone marrow transplant would take place, using those very stem cells to give back to Delaney, to "rescue" herself, and earning another birthday. The chemotherapy she received was too much for Delaney's little body to recover from. Yet again Mommy and Daddy continued with the tradition of a bone marrow transplant, singing happy birthday to Delaney with tears in their eyes while she lay sleeping in her hospital bed. As many of you know Delaney is still immunosuppressed, that being said Delaney has been fiercely fighting off a cold for about a week now. She is trying to shake it off, but being immunosuppressed makes it just that much more difficult. She is very happy and playful with her brothers and is getting better slowly. We are thankful beyond words. Thank you for all the prayers, love, and support. As always...... GO TEAM DELANEY!!!

Happy Birthday Delaney, we love you.

"And though she be but LITTLE, she is FIERCE!"

Wednesday, January 14, 2015

Disney Dollars for Delaney..

Delaney is starting off the new year happy, healthier and strong. Delaney continues to smile big and bright, all the while, doing the best she can to make up for lost time in her childhood and overcome her daily challenges. Early last year, Granada High School started "Disney Dollars for Delaney". A collection of funds to help send Delaney to Disneyland. This fund was started by the students, faculty, staff, and community because one of the first things Delaney was able to verbalize, 2 weeks after her brain operation (because the operation took away her ability to talk) was that she wanted to go to Disneyland. That being said, because of the big hearts and efforts of the students, faculty, staff and community of Granada High School, Delaney was able to go to Disneyland last week. Delaney enjoyed every minute she was there! Laughing, smiling, and creating new, powerful, lasting memories with the family. On the happiest place on earth, of course. Thank you, to all who helped make that possible for Delaney and the family. There were many highlights from the trip, but one was very emotional for mommy and daddy. As Mommy and Daddy continue to work very hard with Delaney on every meal, on the way back from Disneyland we stopped at In-N-Out Burger. We knew it would be a long shot to try and get her to eat, but we tried anyway. At first Delaney was adamant that she did not want any food, and then at the last second she asked for a grilled cheese sandwich, and of course we followed up, asking her if she would like a milkshake also. And she said yes. The food came and the real challenge was in front of her. First she tried the milkshake, she smiled big, then followed by a nibble on the grilled cheese, and then another and another. Then back to the milkshake. The smile she had on her face was so beautiful, and she kept repeating "I like this sandwich!", "I like this sandwich!" We savored those moments, simply watching her eat the grilled cheese, burned into our memory forever. When she was done she ate nearly the entire grilled cheese and all but a few sips of her milkshake, by far this was the most food she consumed in one sitting. It was a good time for Delaney and the family to heal, get some "normalcy" back, and enjoy being together. Little Miss Fierce, keeps working hard every minute of everyday. Thank you for all the prayers, love, and support. As always..... GO TEAM DELANEY!!!!

"And though she be but LITTLE, she is FIERCE!"

Tuesday, December 23, 2014

1 year ago today and a new birthday ....

The picture is painful to view, and brings back a flood of bad memories. However, the picture also shows a Fierce Fighter, and tells a story of pain, struggle, strength, determination, and love. Exactly 1 year ago today, Delaney received her first autologous bone marrow transplant. On this day Delaney received her own stem cells back that were taken from her by a apheresis machine, and preserved. After each bone marrow transplant those very stem cells were given back to Delaney, to "rescue" herself, earning another birthday. The chemotherapy she received was too much for the body of a child. And with the tradition of a bone marrow transplant, Mommy and Daddy softly sang happy birthday to Delaney while she lay in the hospital bed. Delaney has come so far in just one year, and again the most recent picture speaks for it's self. We are thankful beyond words. Thank you for all the prayers, love, and support. As always...... GO TEAM DELANEY!!!
Happy Birthday Delaney, we love you.

"And though she be but LITTLE, she is FIERCE!"

Monday, December 15, 2014

Delaney Continues To Amaze Us........

The appointments continued into this week at Oakland Kaiser and UCSF. Mommy and Daddy were able to go over the MRI images in person with Delaney's neuro-oncologist at Oakland Kaiser, along with the next steps and or phases of Delaney's recovery. Delaney will have another MRI scan in 3 months, the beginning of March to be exact, this will be a milestone because after that scan, Delaney's MRI scans will move out to once every 4 months for a year, instead of every 3 months. Furthermore she will meet with a multi disciplinary team of doctors annually to follow her in her recovery. This is to track any adverse effects to Delaney's body from the chemotherapy and radiation, then to manage those side effects. The appointment went very well, Delaney continues to move forward in recovery, in a positive direction. On to UCSF. At UCSF it was reiterated to Mommy and Daddy that Delaney still has a suppressed immune system and it is sensitive. Although her blood counts and blood chemistry have begun to stabilize it will take more time before they reach a normal level, that being of a child that has not received chemotherapy or radiation. During the appointment there was a diamond in the rough to be had, we are so thankful of certain things, in a horrible situation. That being Delaney's hearing. She has normal hearing and the bone marrow transplant doctor continued to explain that in all of his time, and the high dose of Carboplatin (a chemotherapy drug) Delaney has received, he has never seen a child keep all of their hearing. Most all have a significant loss or decrease in hearing. He said it was simply amazing. Furthermore they have released Delaney to receive "dead" vaccinations once again. And today Delany received 6 separate vaccination shots, another step in the road to recovery. We as a family are so thankful for the new health of Delaney and our family. Also the amazing news on Delaney's MRI and prognosis, an early Christmas gift for Mommy and Daddy that cannot be put into words. Lastly, Thank you. Thanks to each and everyone of you, who continue to follow and support Delaney. Thank you for all the prayers, love, and support. As always ...... GO TEAM DELANEY!!!!!

"And though she be but LITTLE, she is FIERCE!"

Friday, December 5, 2014

MRI is clear!!!!!

We are very blessed. It has been a very stressful week for the family. Thank you for all the prayers, love and, support. As always..... GO TEAM DELANEY!!!

Wednesday, December 3, 2014

Delaney is set to have yet another MRI this Thursday, December 4, at 8am.

It will have already been 3 months from her last MRI. That being said, the almost uncontrollable wave of emotions, stress, anticipation, and anxiety, are real and weighing heavy on our minds. Just the thought of entering the hospital with Delaney is hard enough. However, we will always remain optimistic, positive, and steadfast. We follow Delaney's lead as usual, with a fierce glimmer in her eyes and a big smile on her face, that is all we need to see. Delaney continues to improve in all areas of her daily challenges, well enough, we have begun potty training once again, picking up where we left off 14 months ago. As we all continue to recover emotionally and physically, our house feels more alive and happy again, and just from the simple joy of seeing our children being able to play with one another and have a childhood. With much love, we thank you all for the continued prayers, love and support. As always..... GO TEAM DELANEY!!!

"And though she be but LITTLE, she is FIERCE!"

Friday, November 14, 2014

Smiles, smiles, smiles.

It has been a very, very, long, exhausting, emotional, and difficult year. Yet it remains a year that cannot be put into words. However, there were, and still are, two constants. Those two constants have been ever so profound in Delaney's character and those are her fierceness and most importantly her ability to smile in the most horrible of circumstances. As many of you have seen and probably agree with. Each day, she smiles brighter and bigger, reminding us, as a family, to seek out the positives in any circumstances, because the negativity can bring you down. It is interesting how much we can learn form a 3 year old child. There are two other little victories that Delaney has had since her last post, pertaining to her vision and hearing, where she had a 6 month post treatment follow up for both. Even though she has strabismus in her left eye, caused from the pressure of the tumor, Delaney has 20/20 vision. This is not always the case. And Delaney's hearing remains unaffected from the aggressive amounts of chemotherapy and radiation. Furthermore, Delaney is physically getting stronger, walking and playing. As for her eating, it is still a daily challenge, but the aversion to eating is losing its grip, as Delaney fiercely pushes forward. December 4th marks yet another day for another MRI. 3 months will have passed already since her last MRI. We thank each of you for continuing to walk with Delaney and our family through this journey. Thank you for all the prayers, love, and support. As always ..... GO TEAM DELANEY!!!

"And though she be but, LITTLE she is FIERCE!"