Friday, September 12, 2014

On This Fierce Friday, It has been one year to day, that Delaney was at Oakland Kaiser, and already headed down for a 12 hour brain operation to remove a tumor, measuring 4cm X 5cm.

The operation was a success it was a 100% gross resection, we are so blessed and thankful. The resection was Delaney's biggest first step in her Fierce Fight. Later only to find out it was cancerous, and she was diagnosed with medulloblastoma. A nationally recognized protocol for treatment was to follow; 3 rounds of chemotherapy at Kaiser Oakland, 3 triple tandem chemotherapy treatments with 3 autologous bone marrow transplants and 28 days of focal radiation. Yes, the MRI is ugly, and brings about unexplainable emotions and memories for Mommy and Daddy, but it is an ugly truth, a truth that Delaney and other children are faced with, without choice, fiercely fighting for life.

Delaney's feeding tube has been out for almost 7 weeks now. Delaney is working very hard on her eating, it still remains challenging for her, Mommy and Daddy. Delaney has many, many challenges she still faces on a daily basis. We will continue to follow Delaney's lead, fiercely moving forward, on the slow road to recovery. Again we cannot thank each of you enough for all of the support you have give Delaney and our family. Thank you for all the prayers, love and support. As always.... GO TEAM DELANEY!!!!!

"And though she be but LITTLE, she is FIERCE!

Thursday, September 11, 2014

This month Team Delaney - Home Page will be going gold to support Delaney and Childhood Cancer. Join Delaney and others like her fight this battle by going gold.

"And though she be but LITTLE, she is FIERCE!"

Monday, September 8, 2014

365 Days of Fierce, and Counting!

Exactly 1 year ago today Delaney was admitted to the hospital and her FIERCE Fight began. Just a few days later Delaney would endure a 12 hour successful brain surgery followed by an aggressive treatment plan that included 6 rounds of chemotherapy, 28 days of focal radiation, MRIs, blood transfusions, stem cells, and so much more that no child should ever have to experience. As challenging and hard as it was for Delaney, she is now, as of today, 98 days Cancer Free!

We could not have done it without the support of family, friends, strangers now friends, communities around the country, businesses, nonprofits, co-workers, fundraisers, doctors, nurses, 4,500 plus Fierce Friday shirts, and of course the countless prayers and support we continue to see for Delaney. We are truly blessed to have our daughter surrounded by so many loving and caring people.

"And though she be but LITTLE, she is FIERCE!"

https://www.youtube.com/watch?v=H4oMkYLh0AQ

MRI Clear!!!

We received Delaney's MRI results this afternoon and she remains cancer free with no evidence of tumor! The wait for the MRI results feel crippling, making it hard to get through the day, but receiving such amazing news is a blessing, and makes it all go away. With a hug and a kiss to Delaney from Mommy and Daddy, and telling her, "I Love You." It is in these moments we are thankful for the innocence of a young child, to live life each day, perhaps not fully understanding exactly what is going on. Thank you for all the prayers, love and support. As always... GO TEAM DELANEY!!!

"And though she be but LITTLE, she is FIERCE!"

Saturday, August 30, 2014

Delaney is just shy of a year (by two weeks) since she underwent a successful 12 hour brain operation to remove a tumor.

After the brain operation Delaney lost the ability to sit up, walk, talk, and eat, Delaney lost the ability to do everything. Even her vision was and is still effected. From that day forward Delaney has had to re-learn everything she already knew how to do. All the while battling the effects of chemotherapy and radiation. But she has worked fiercely to get where she is today. The road to recovery will be slow and long but Delaney puts a smile on each day working hard re-gain all that was lost. Delaney has had a busy week with feeding therapy, an appointment for an infusion to help her immune system recover, 2 weight checks, feeding tube still out, and physical therapy. Since Delaney did not have her Broviac she needed an IV placed in her hand, and Delaney did outstanding with the needle stick, with the help of Emla cream, used to numb her skin. At her weight check on Monday Delaney lost 1 1/2 pounds over 3 weeks. Then today at her weight check 4 days later she gained a 1/2 pound back. We hope that her weight is starting to stabilize. On Tuesday, September 2nd, Delaney will have another full brain and spine MRI. A day full of stress, anxiety, and unexplainable emotions. But as she has done before, just one look from Delaney and Mommy and Daddy are quickly reminded and filled with a fierce drive to do all we can to comfort her and keep her heathy and moving forward. Thank you for always thinking of our daughter, and family. Thank you for all the prayers, love and support. As always.... GO TEAM DELANEY!!!!

"And though she be but LITTLE, she is FIERCE!"

Tuesday, August 19, 2014

Delaney's feed tube remains out!!

Just over 2 weeks now and Delaney's feed tube remains out. Delaney has only lost 1/2 pound over the course of 2 weeks. A huge accomplishment for Delaney considering she has not eaten on her own for almost a year. Delaney is working extremely hard to try and eat, and every meal or snack is very challenging for her. Mommy and Daddy are right by her side encouraging her in every way, however, it is very stressful and an extreme amount of work, as we can not help but count every calorie, weigh every bite out in grams, and track all of her liquid intake. By doing so we hope to have the best understanding as to where she is getting the most of her calories or how to make up calories when she is lacking them. Also it is to continue to keep the feeding tube out. Delaney is still currently taking zofran an anti nausea medication twice per day. We have begun to taper this slowly so that she may be completely off medication in a few weeks. Delaney continues to be very active and happy. She has had more opportunities to go to the park and go swimming. Which we guess the pool feels good for her since she continues to regain her ability to walk. Delaney will not be weighed for week, unless there are some drastic changes in her eating and drinking habits. Thank you for all the prayers, love, and support. As always.... GO TEAM DELANEY!!!

"And though she be but LITTLE, she is FIERCE!"

Thursday, August 14, 2014

Delaney's progress continues....

It has been 8 days since Delaney's feeding tube was removed. Mommy and Daddy are thrilled to say the feeding tube remains out. However, it goes without saying that each day is a challenge, and a lot of hard work is put into each meal and snack. If you were to name a food or drink we can almost guarantee we have tried more than once and in 3 different ways. We have established a few "go to" foods and those include Danimals, yogurt, chocolate milk, juice boxes, grapes, Cheerios, and BBQ chips and all other food is hit or miss through out the day. There is a constant balance between re-affirming the consequences of not eating and encouraging and supporting each and every bite. Mommy and Daddy trying to make more time for Delaney to venture out but the fear of serious infection has been so deeply ingrained in us, it is a way of life that is not easily changed. For example when Mommy and Daddy took Delaney to park, Mommy essentially disinfected the entire play structure where Delaney was playing and where her hands would touch. It sounds unreal but we have had to live that way, even under our own roof for the past 11 months. As with everything that we do for Delaney it is a means to and end, a healthy happy child. Delaney remains happy, active and full of love. Thank you for all the prayers, love, support. As always...... GO TEAM DELANEY!!!

"And though she be but LITTLE, she is FIERCE!"