Thursday, October 30, 2014

Delaney is doing wonderful.

No matter what challenges Delaney faces daily, she continues to make progress in all areas of her young life. Yesterday, Delaney had a doctors appointment with her pediatrician, for a thorough exam and to receive her 2nd flu shot. Thankfully her T-Cells are functioning well enough for her to receive her 1st flu shot 30 days ago, and the 2nd yesterday. Delaney's immune system is very fragile and must be treated as though she is a newborn. Delaney's weight is on track and has leveled at around 30 1/2 lbs. range, she is in the 50th percentile for her weight. She in trying more foods and had 1/2 of a hot dog the other day, a big step for her. As for Delaney's motor skills, she, for the most part is walking unassisted through out the house, playing with her brothers, but Mommy and Daddy can see the pride beaming from her face when she gets things out of the refrigerator, or throws trash away, it is the independence she feels, having been dependent for so long. Delaney is making brief trips out of the house, going to the pumpkin patch, walking downtown, and visiting Daddy at work. Most importantly we are able to spend time as a family, doing little things together. We can not be thankful enough for everyone's support, that being said, thank you, for all of the continued support, love, and prayers for our daughter Delaney, they are truly appreciated. As always..... GO TEAM DELANEY!!!

"And though she be but LITTLE, she is FIERCE!"

Thursday, October 23, 2014

Wishes Really Do Come True!!!!!

The greatest wish we can ever want is Delaney's health and happiness and we continue to see her wish grow everyday.

Things continue to move in a positive direction for Delaney, all the while she works hard each and everyday, not letting the set backs or challenges get the best of her or us. Delaney is getting stronger, happier, and healthier everyday. We are all so thankful, and blessed to see how far she has come. It makes Mommy and Daddy's hearts so happy to see her enjoying life, as she should, as a child without a care in the world, and not being sick. The mental scars and healing continue, and this was apparent while Delaney was on her Make A Wish trip to Disneyland. As we pulled into the cement parking structure at Disneyland, immediately and without hesitation Delaney said "We are at Doctors?" Which we replied "No baby girl, we are at Disneyland!" This was because the parking structure reminded her of where she received radiation for, for 28 days. This conversation of reassurance continued for a couple of minutes, but there was no convincing Delaney. It was hard and sad for Mommy and Daddy to hear Delaney say that. However, we as a family are beginning and tying our best to push out the horrible, bad memories, and replace them with new, happy, joyful memories. It will take time but we will get there.

Thank you for all the prayers, love, and support. As always.... GO TEAM DELANEY!!

"And though she be but LITTLE she is FIERCE!

Wednesday, October 8, 2014

Another Milestone.....

Yesterday was the mark of yet another milestone. Delaney's home health nurse came by for the last time yesterday, for a health evaluation and weight check on Delaney. It felt like this day would never come. Delaney has received care from the same nurse for nearly one year, every single week and at times, up to 3 times per week. She was there to answer calls at all hours of the day or night, (even at 11pm when Delaney threw up her feeding tube, that she needed for medication and formula). She was there to provide detailed loving nursing care, clarity in confusion, and simply said, she does a job that is a difficult one, to say the least, and one that can only be done by a few. It is not goodbye, just the start of a new chapter. Thank you Rosie. For your care for Delaney, we love you. Little Miss Fierce 's weight is up again another 1.5 oz, a total weight increase of 3oz in a little over a week. She now weighs 30lbs. 12oz. We are very proud of Delaney and her hard work to eat food again. Next, because of the possible side effects from the brain operation, chemotherapy, and radiation Mommy and Daddy set up an evaluation with the Livermore School District for Delaney. This evaluation is a proactive approach to make sure Delaney is on track or remains age appropriate for schooling, and if necessary, to find out what early education resources are available to her. The evaluation was performed by a team from the school district, specializing in many different areas of cognitive development. Upon leaving we were happy and thankful to hear that things seem on track, except for the obvious physical setbacks. We will meet with the team again at the end of the month to go over their findings in detail. Delaney is doing great, she is very happy playing with her brothers, and gaining more of her childhood back each day. She has come so far and in a horrible situation Mommy and Daddy are so very thankful for the outcome all the positive progress she is making. Thank you for all the prayers, love, and support. As always.... GO TEAM DELANEY!!!

"And though she be but LITTLE, she is FIERCE!"

Tuesday, September 30, 2014

It has been been a solid 2 weeks since Mommy and Daddy have been able to do a complete and thorough update on Delaney. First off Mommy and Daddy are thrilled to say that Delaney is happy, laughing, full of love and over all, is doing great! A full 8 weeks have passed since Delaney's feeding tube was removed, (after being placed for a year) and now is starting to become a bad memory for all of us. Delaney's last weight check was on Friday, September 26th. She weighs 30lbs. 9oz. Up 3oz from her lowest weight (30lbs. 6oz.). We are optimistic, hoping, and praying that her weight has stabilized and will now finally begin trending upward, gaining weight. She will be weighed again on Friday. This last week Delaney has reached 1000 calories per day, her primary source of nutrition remains puréed foods, milk, and a few solid foods. Physically, Delaney is making progress after she lost the ability to walk over a year ago, Mommy and Daddy are able to watch Delaney walk small distances through out the house unassisted, such a beautiful thing to watch. As a family we try to regain or adapt to our "new normal" but there are many challenges still faced each day due to Delaney's brain operation, chemotherapy and radiation. As hard and challenging as the days are, we are blessed and thankful for Delaney's prognosis, progress, and the ability to regain her physical abilities and health. It is what she gave up during treatment, in order to become healthy again. We as a family are grateful to each and every one of you, beyond words, for the support and love you have given Delaney. Thank you for all the prayers, love, and support. As always ..... GO TEAM DELANEY!!!

"And though she be but LITTLE, she is FIERCE!"

Saturday, September 27, 2014


Team Delaney has partnered with Mamas Night Out - A Benefit to Unravel Pediatric Cancer for an amazing event in Livermore. For each ticket purchased using " Team D" promotion code during your check out $20 dollars will go to Delaney for her recovery and therapy.

Saturday, October 18, 2014 5:00 PM to 11:00 PM The Barn 3131 Pacific Ave Livermore, CA 94550

A little bit about Unravel Pediatric Cancer... Unravel is a nonprofit organization working to spread knowledge about the grim realities of pediatric cancer and the devastating impact from the lack of funding. We supply the information, tools and support to individuals and communities that want to help create change– because good people want to do good things but sometimes they need help getting started. All monies raised by and for Unravel will go directly to the fight against pediatric cancer.

To purchase tickets click on link below.

"And though she be but LITTLE, she is FIERCE!"

Friday, September 12, 2014

On This Fierce Friday, It has been one year to day, that Delaney was at Oakland Kaiser, and already headed down for a 12 hour brain operation to remove a tumor, measuring 4cm X 5cm.

The operation was a success it was a 100% gross resection, we are so blessed and thankful. The resection was Delaney's biggest first step in her Fierce Fight. Later only to find out it was cancerous, and she was diagnosed with medulloblastoma. A nationally recognized protocol for treatment was to follow; 3 rounds of chemotherapy at Kaiser Oakland, 3 triple tandem chemotherapy treatments with 3 autologous bone marrow transplants and 28 days of focal radiation. Yes, the MRI is ugly, and brings about unexplainable emotions and memories for Mommy and Daddy, but it is an ugly truth, a truth that Delaney and other children are faced with, without choice, fiercely fighting for life.

Delaney's feeding tube has been out for almost 7 weeks now. Delaney is working very hard on her eating, it still remains challenging for her, Mommy and Daddy. Delaney has many, many challenges she still faces on a daily basis. We will continue to follow Delaney's lead, fiercely moving forward, on the slow road to recovery. Again we cannot thank each of you enough for all of the support you have give Delaney and our family. Thank you for all the prayers, love and support. As always.... GO TEAM DELANEY!!!!!

"And though she be but LITTLE, she is FIERCE!

Thursday, September 11, 2014

This month Team Delaney - Home Page will be going gold to support Delaney and Childhood Cancer. Join Delaney and others like her fight this battle by going gold.

"And though she be but LITTLE, she is FIERCE!"