Monday, December 15, 2014

Delaney Continues To Amaze Us........

The appointments continued into this week at Oakland Kaiser and UCSF. Mommy and Daddy were able to go over the MRI images in person with Delaney's neuro-oncologist at Oakland Kaiser, along with the next steps and or phases of Delaney's recovery. Delaney will have another MRI scan in 3 months, the beginning of March to be exact, this will be a milestone because after that scan, Delaney's MRI scans will move out to once every 4 months for a year, instead of every 3 months. Furthermore she will meet with a multi disciplinary team of doctors annually to follow her in her recovery. This is to track any adverse effects to Delaney's body from the chemotherapy and radiation, then to manage those side effects. The appointment went very well, Delaney continues to move forward in recovery, in a positive direction. On to UCSF. At UCSF it was reiterated to Mommy and Daddy that Delaney still has a suppressed immune system and it is sensitive. Although her blood counts and blood chemistry have begun to stabilize it will take more time before they reach a normal level, that being of a child that has not received chemotherapy or radiation. During the appointment there was a diamond in the rough to be had, we are so thankful of certain things, in a horrible situation. That being Delaney's hearing. She has normal hearing and the bone marrow transplant doctor continued to explain that in all of his time, and the high dose of Carboplatin (a chemotherapy drug) Delaney has received, he has never seen a child keep all of their hearing. Most all have a significant loss or decrease in hearing. He said it was simply amazing. Furthermore they have released Delaney to receive "dead" vaccinations once again. And today Delany received 6 separate vaccination shots, another step in the road to recovery. We as a family are so thankful for the new health of Delaney and our family. Also the amazing news on Delaney's MRI and prognosis, an early Christmas gift for Mommy and Daddy that cannot be put into words. Lastly, Thank you. Thanks to each and everyone of you, who continue to follow and support Delaney. Thank you for all the prayers, love, and support. As always ...... GO TEAM DELANEY!!!!!

"And though she be but LITTLE, she is FIERCE!"

Friday, December 5, 2014

MRI is clear!!!!!

We are very blessed. It has been a very stressful week for the family. Thank you for all the prayers, love and, support. As always..... GO TEAM DELANEY!!!

Wednesday, December 3, 2014

Delaney is set to have yet another MRI this Thursday, December 4, at 8am.

It will have already been 3 months from her last MRI. That being said, the almost uncontrollable wave of emotions, stress, anticipation, and anxiety, are real and weighing heavy on our minds. Just the thought of entering the hospital with Delaney is hard enough. However, we will always remain optimistic, positive, and steadfast. We follow Delaney's lead as usual, with a fierce glimmer in her eyes and a big smile on her face, that is all we need to see. Delaney continues to improve in all areas of her daily challenges, well enough, we have begun potty training once again, picking up where we left off 14 months ago. As we all continue to recover emotionally and physically, our house feels more alive and happy again, and just from the simple joy of seeing our children being able to play with one another and have a childhood. With much love, we thank you all for the continued prayers, love and support. As always..... GO TEAM DELANEY!!!

"And though she be but LITTLE, she is FIERCE!"

Friday, November 14, 2014

Smiles, smiles, smiles.

It has been a very, very, long, exhausting, emotional, and difficult year. Yet it remains a year that cannot be put into words. However, there were, and still are, two constants. Those two constants have been ever so profound in Delaney's character and those are her fierceness and most importantly her ability to smile in the most horrible of circumstances. As many of you have seen and probably agree with. Each day, she smiles brighter and bigger, reminding us, as a family, to seek out the positives in any circumstances, because the negativity can bring you down. It is interesting how much we can learn form a 3 year old child. There are two other little victories that Delaney has had since her last post, pertaining to her vision and hearing, where she had a 6 month post treatment follow up for both. Even though she has strabismus in her left eye, caused from the pressure of the tumor, Delaney has 20/20 vision. This is not always the case. And Delaney's hearing remains unaffected from the aggressive amounts of chemotherapy and radiation. Furthermore, Delaney is physically getting stronger, walking and playing. As for her eating, it is still a daily challenge, but the aversion to eating is losing its grip, as Delaney fiercely pushes forward. December 4th marks yet another day for another MRI. 3 months will have passed already since her last MRI. We thank each of you for continuing to walk with Delaney and our family through this journey. Thank you for all the prayers, love, and support. As always ..... GO TEAM DELANEY!!!

"And though she be but, LITTLE she is FIERCE!"

Thursday, October 30, 2014

Delaney is doing wonderful.

No matter what challenges Delaney faces daily, she continues to make progress in all areas of her young life. Yesterday, Delaney had a doctors appointment with her pediatrician, for a thorough exam and to receive her 2nd flu shot. Thankfully her T-Cells are functioning well enough for her to receive her 1st flu shot 30 days ago, and the 2nd yesterday. Delaney's immune system is very fragile and must be treated as though she is a newborn. Delaney's weight is on track and has leveled at around 30 1/2 lbs. range, she is in the 50th percentile for her weight. She in trying more foods and had 1/2 of a hot dog the other day, a big step for her. As for Delaney's motor skills, she, for the most part is walking unassisted through out the house, playing with her brothers, but Mommy and Daddy can see the pride beaming from her face when she gets things out of the refrigerator, or throws trash away, it is the independence she feels, having been dependent for so long. Delaney is making brief trips out of the house, going to the pumpkin patch, walking downtown, and visiting Daddy at work. Most importantly we are able to spend time as a family, doing little things together. We can not be thankful enough for everyone's support, that being said, thank you, for all of the continued support, love, and prayers for our daughter Delaney, they are truly appreciated. As always..... GO TEAM DELANEY!!!

"And though she be but LITTLE, she is FIERCE!"

Thursday, October 23, 2014

Wishes Really Do Come True!!!!!

The greatest wish we can ever want is Delaney's health and happiness and we continue to see her wish grow everyday.

Things continue to move in a positive direction for Delaney, all the while she works hard each and everyday, not letting the set backs or challenges get the best of her or us. Delaney is getting stronger, happier, and healthier everyday. We are all so thankful, and blessed to see how far she has come. It makes Mommy and Daddy's hearts so happy to see her enjoying life, as she should, as a child without a care in the world, and not being sick. The mental scars and healing continue, and this was apparent while Delaney was on her Make A Wish trip to Disneyland. As we pulled into the cement parking structure at Disneyland, immediately and without hesitation Delaney said "We are at Doctors?" Which we replied "No baby girl, we are at Disneyland!" This was because the parking structure reminded her of where she received radiation for, for 28 days. This conversation of reassurance continued for a couple of minutes, but there was no convincing Delaney. It was hard and sad for Mommy and Daddy to hear Delaney say that. However, we as a family are beginning and tying our best to push out the horrible, bad memories, and replace them with new, happy, joyful memories. It will take time but we will get there.

Thank you for all the prayers, love, and support. As always.... GO TEAM DELANEY!!

"And though she be but LITTLE she is FIERCE!

Wednesday, October 8, 2014

Another Milestone.....

Yesterday was the mark of yet another milestone. Delaney's home health nurse came by for the last time yesterday, for a health evaluation and weight check on Delaney. It felt like this day would never come. Delaney has received care from the same nurse for nearly one year, every single week and at times, up to 3 times per week. She was there to answer calls at all hours of the day or night, (even at 11pm when Delaney threw up her feeding tube, that she needed for medication and formula). She was there to provide detailed loving nursing care, clarity in confusion, and simply said, she does a job that is a difficult one, to say the least, and one that can only be done by a few. It is not goodbye, just the start of a new chapter. Thank you Rosie. For your care for Delaney, we love you. Little Miss Fierce 's weight is up again another 1.5 oz, a total weight increase of 3oz in a little over a week. She now weighs 30lbs. 12oz. We are very proud of Delaney and her hard work to eat food again. Next, because of the possible side effects from the brain operation, chemotherapy, and radiation Mommy and Daddy set up an evaluation with the Livermore School District for Delaney. This evaluation is a proactive approach to make sure Delaney is on track or remains age appropriate for schooling, and if necessary, to find out what early education resources are available to her. The evaluation was performed by a team from the school district, specializing in many different areas of cognitive development. Upon leaving we were happy and thankful to hear that things seem on track, except for the obvious physical setbacks. We will meet with the team again at the end of the month to go over their findings in detail. Delaney is doing great, she is very happy playing with her brothers, and gaining more of her childhood back each day. She has come so far and in a horrible situation Mommy and Daddy are so very thankful for the outcome all the positive progress she is making. Thank you for all the prayers, love, and support. As always.... GO TEAM DELANEY!!!

"And though she be but LITTLE, she is FIERCE!"