Tuesday, September 30, 2014

It has been been a solid 2 weeks since Mommy and Daddy have been able to do a complete and thorough update on Delaney. First off Mommy and Daddy are thrilled to say that Delaney is happy, laughing, full of love and over all, is doing great! A full 8 weeks have passed since Delaney's feeding tube was removed, (after being placed for a year) and now is starting to become a bad memory for all of us. Delaney's last weight check was on Friday, September 26th. She weighs 30lbs. 9oz. Up 3oz from her lowest weight (30lbs. 6oz.). We are optimistic, hoping, and praying that her weight has stabilized and will now finally begin trending upward, gaining weight. She will be weighed again on Friday. This last week Delaney has reached 1000 calories per day, her primary source of nutrition remains puréed foods, milk, and a few solid foods. Physically, Delaney is making progress after she lost the ability to walk over a year ago, Mommy and Daddy are able to watch Delaney walk small distances through out the house unassisted, such a beautiful thing to watch. As a family we try to regain or adapt to our "new normal" but there are many challenges still faced each day due to Delaney's brain operation, chemotherapy and radiation. As hard and challenging as the days are, we are blessed and thankful for Delaney's prognosis, progress, and the ability to regain her physical abilities and health. It is what she gave up during treatment, in order to become healthy again. We as a family are grateful to each and every one of you, beyond words, for the support and love you have given Delaney. Thank you for all the prayers, love, and support. As always ..... GO TEAM DELANEY!!!

"And though she be but LITTLE, she is FIERCE!"

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