Friday, May 16, 2014

Two Weeks Post Treatment

It has been two weeks since Delaney completed her treatment. She is doing well and getting stronger everyday. She loves spending time with both of her younger brothers and becoming a child once again. She still has many, many hurdles ahead in her story, but she will meet them with the same fierceness, which we have all witnessed. Delaney has been given the ok to start her intense physical therapy, and she met with her physical therapist on Tuesday and her physical therapist is pleased with her progress and Delaney is working on building up her leg strength, balance, and corrdination. Delaney's reflexes remain absent but will recover over time. Following physical therapy Delaney had her eye appointment. The eye doctor said her vision is almost equal out if each eye and if she were not patching her eye on a daily basis all this time Delaney would have lost vision out if her left eye. So the patching will continue until she can have the surgery on her eye to correct her eye muscle, which will probably be in September. Delaney had a blood draw on Monday and her blood counts continue to stabilize, but her white blood cells keep her just about being neutropenic. Delaney has finally tested negative for C Diff, she has had C Diff since November of last year. Delaney still is not eating due to the location of the tumor, chemotherapy, radiation, and vomiting everyday for the past 7 months. She now has a food aversion and will begin therapy also on how to eat again. There is a picture of Delaney's scar to remove the tumor it measures about 6" long, and there is a dis colored patch due to radiation (which looks much better after 2 weeks of healing. Under the incision there is a piece of Delaney's skull that is missing and will not be put back. Almost a 3" diameter circle. She has had the lining of a cows heart placed over her brain, then her muscle and tissue sewed back together to close up the site. She cannot play any contact sports for the rest of her life. Not to mention Mommy and Daddy as well as Delaney must be cognoscente of the soft spot on her head throughout daily life and activities. In the big picture It is a small price to pay. But hey scars are cool, they tell us a story, remind us that the past was real, and show us how fierce one can be. Thank you for all the prayers, love and support. As always.... GO TEAM DELANEY!!

"And though she be but LITTLE, she is FIERCE!"

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