Friday, June 20, 2014

Delaney's Fierce Friday Update...

Delaney continues to write her story each and everyday, working Fiercely on her daily challenges and struggles, because when a child fights cancer or the effects of it, they don't get days off. Delaney will be tested once again this Sunday. Mommy and Daddy will pull Delaney's feeding tube in an attempt to get Delaney eating again. She has been on a feeding tube for 9 months now. We hope that the drive to eat will suppress or overpower the anxiety and fear of vomiting from eating food. We will pull her feeding tube after 6pm on Sunday and depending on how she does it may stay out from 1-3 days or longer. If we don't try we won't know. Mommy and Daddy have work hard to build up Delaney's bolus feeds each push to stretch her stomach so when she does not get formula she will feel the hunger also we have built up a reserve in body weight to let her go 1-3 days with limited food, if needed. Delaney will be monitored very closely, by calorie counting, and monitoring hydration. It will be very stressful, difficult, and hard for Delaney and it will be hard on Mommy and Daddy also. We will do our best to keep updates on her progress, as we do not know what to expect. Thank you for all the prayers, love, and support. As always.... GO TEAM DELANEY!!!

"And though she be but LITTLE, she is FIERCE!"

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