Saturday, June 7, 2014

Delaney's progress and appointment results this week....

Delaney had two bigs days with follow up appointments after her MRI scan. On Tuesday Delaney had an appointment with her neuro-oncologist and neuro team, that consists of 10 doctors. The appointment went very well. Mommy and daddy were able to view all of the MRI scans from the tumor, to the resection, and all follow up scans. The scans were viewed side by side and we could see the results. Delaney has come along way. Delaney's neuro-oncologist said that Delaney is officially done receiving treatment. A slight bit of closure for us all, however Delaney has a long road ahead of her still. Delaney will have follow up MRI scans every 3 months for a year, then very 4 months for a year then, then every 6 months for a year and then finally once each year. Her blood counts continue to rise only a few counts have reached that of a normal healthy child. The doctors did say for the extremely aggressive and big big doses of chemotherapy (doses bigger than they give grown adults) Delaney flew through treatment. Delaney will have her last lumbar puncture to test her spinal fluid. During this procedure Delaney will have her Broviac removed. The central line that goes directly to her heart. This will hopefully be in the next 2 weeks, another huge step to recovery and removing an infection risk.

Then on Wednesday Delaney had her 3 month follow up appointment with her bone marrow transplant team and UCSF. There Delaney had 6 vials of blood drawn to send off to the Mayo Clinic to test her T-cells to see how they are functioning and what, if any infections she can fight off. They also said Delaney must remain on isolation until results are received from the blood work. It has been a busy two weeks, with an appointment each day, and we can see it is beginning to wear on Delaney, as well as the rest of us. Delaney continues with food therapy twice a week and physical therapy at least once per week. Delaney is doing well, she is happy, working on becoming more independent, and enjoying life. Thank you for all the prayers, love, and support. As always... GO TEAM DELANEY!!!

"And though she be but LITTLE, she is FIERCE!"

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