Wednesday, April 2, 2014

7 paper chains down, 21 more to go.......

The week started off rough for Delaney. Sunday night, 15 minutes before her formula was to be shut off for the night Delaney vomited, and it was such a large vomit her feeding tube came out through her mouth immediately, and Daddy had to pull the tube out through her nose. Mommy and Grandma were quickly by Delaney's side. It was an anxious night since Delaney is not eating or drinking on her own and she lost most of her nutrients and hydration that night. That morning, Monday, Week 2 of focal radiation began. Since Delaney vomited and lost hydration Mommy and Daddy asked for an IV bolus of fluid while she was sedated to keep her well hydrated until she could have her feeding tube placed again. Delaney's home health nurse was by that morning and placed the Feeding tube back in again. Delaney continues to do very well through radiation treatment, her radio oncologist said that her CAT scans that are taken before each treatment are overlaying perfect with last MRI she had, as this is the mapping for the delivery of the radiation. Delaney is very happy and active at home but does take longer naps. Today Delaney had a follow up appointment with pediatric physical therapy to assess her progress of her motor functions. Since the brain operation Delaney has had to re-learn all of her basic motor functions that we use everyday, without realizing it. The physical therapist said Delaney has improved immensely, one step at a time she is taking back what once was hers. The days and nights are long, slow and grinding, but Delaney surprised Mommy and Daddy today by smiling, pointing and even did a little dance as she showed us to her treatment room where she receives radiation. She is very determined and pushes thorough each treatment, making it look so easy. Thank you for all of the prayers, love and support. As always..... GO TEAM DELANEY!!!

"And though she be but LITTLE, she is FIERCE!"

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