Although Delaney was very happy and she is as strong and fierce as ever, the day started out great but became frustrating and challenging. Yesterday, Delaney once again further cementing her motto, reminding us, and though she be but little, she is fierce. Delaney's home health nurse came by to asses Delaney and her progress after cycle 5. Everything checked out great, Delaney is making good ground on recovering, ramping up for her last chemotherapy cycle. The problem began when Delaney's feed tube became clogged after only 16 days of being placed. Mommy and Daddy tried feverishly for over an hour using different techniques to unclog the NG tube, before it would have to be pulled and replaced. Also Knowing that having an NG tube placed, brings more stress and anxiety than anything to Delaney. We called the home health nurse back after she had left because we knew it was clogged, it needed to be replaced, but we kept trying. The home health nurse was back at our house, and she too had no luck. We had to pull the tube. Next we had to place a new tube at home, we had to place the tube 3 separate times just to get it in the right spot. This was very hard for Delaney. It is never easy for Mommy and Daddy to hold her in position to place the tube, hearing her and seeing her in so much discomfort. Then it was off to Livermore kaiser for an x-Ray to confirm placement. The x-ray confirms it was in the right spot but needed to be advanced further to make sure it stays in her stomach. So again Delaney had to be held and the tube advanced once more. When we got home we received a call from Delaney's neuro oncologist and he wanted her tube advanced another 2cm, so her home health nurse was back in 30 minutes and again we had to push Delaney's feeding tube further in. It took a total of 5 sticker changes on her face, but finally her tube was in the right spot. And she had not had any food from 1030am until 3pm. It is not easy to put an NG tube in, it takes a some finesse, and then to put one in on a 2 1/2 year old. It was a rough day, but Delaney kept it fierce, and she was exhausted afterwards, she missed her nap yesterday due to NG tube. Not the day we were expecting but, nor Delaney. Delaney, Mommy and Daddy must be ready to adapt and adjust to the day, we have learned it is never our day to plan. Thank you for all the prayers, love and support. As always... GO TEAM DELANEY!!!
"And though she be but LITTLE, she is FIERCE!"