So today was another good day. The syndrome was at its best (Delaney was very, very irritable today) 1 day at a time. The Arterial line was removed today, so she has another free limb. She had an EKG today for a baseline pre-chemo. We were able to hold her all day, which she liked. She is eating non stop. Her favorites are chocolate pudding and yogurt. She blew another IV, so the nurses will be coming back this evening to give her a new one (this would be her 6th). She also had her first physical therapy appointment. She can't hold her head up yet, but the PT says she is doing great. She is not able to stand/walk. We may have to go to children's Oakland for rehab, but that will be determined later. We are just enjoying every second we can. It doesn't sound like we will be going home until after the first round of chemo. Living in a hospital is not ideal, but Kaiser Oakland nurses and doctors have been amazing. We may be moving out of the pediatric intensive care unit in a few days. They will transfer us to the Pediatric ward. Tomorrow Delaney has a test for her kidneys, also for a baseline pre-chemo.
We appreciate all of the love, prayers and support from everyone.
Everyday we post a motivational quote above D's bed.
Quote of the day:
"You can't direct the wind, but you can adjust your sails"