Monday, September 30, 2013

DAY 17 Post Op

Delaney has been admitted to the hospital for 3 weeks straight as of today. With her mommy and daddy right by her side every step of the way. Last night was a rough night. Delaney was up every hour on the hour. The steroids she is on makes her very hungry so she had cereal at 2am and Mac n' cheese at 5am. She did not want to get out of bed for PT all day. Delaney has decided that she no longer wants to wear a diaper, so she has been commando all day. ;-) she has increased her chocolate milk intake to about 56 oz. The neurosurgeon took the dressing off of her incision. Her incision is about 6" long at the back of her head. He says she is still making great progress. He will assess her incision and see if he can take her stitches out while she is under anesthesia on Tuesday. PT came in again and worked with her neck control. We will get there soon. She is very particular about who can do what. For example; mommy is the only one who can scoot her up in bed and daddy is the only one who can hold her chocolate milk for her. She is learning what things she has control over (I.e. wearing diapers, getting her temp taken, wearing her BP cuff). Delaney's 1 year old brother Merlin came for a visit today, with Grandma and Grandpa. She really lights up when she sees him. They laid in her crib and watched Monsters Inc. she was very happy to have her brother here! She has eye and ear exams tomorrow, for baselines prior to chemo. All in all today was good. Hopefully tomorrow will be another good day and Delaney will make more progress! GO TEAM DELANEY!!

Furthermore we would not only like thank everyone for the prayers, thoughts, love, and support, but the huge network of professional care Delaney has received. This being her team of Pediatric Neurosurgery, PICU Physicians, and PICU nurses. We thank you all who have had a hand in the care of Delaney. All of us together truly makes us, TEAM DELANEY!!

Quote of the day: "hardships often prepare ordinary people for an extraordinary life"

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