Sunday, December 1, 2013

Friday Update

Last night Delaney had other plans than sleeping she was up at 1230 am. Mommy and Daddy took turns staying up with Delaney. It was a long night. The night rolled into an early morning admission to Oakland Kaiser for blood and platelets. Delaney's blood counts are very low her white blood count is zero, her red blood cells and platelets low enough that she gets tired very quick and pulling a band aide off of her skin will cause her to bruise. Delaney received platelets over one hour and the blood was transfused over 3 hours. She does receive medication prior to blood and platelets, Tylenol and Benadryl, this is to prevent a reaction from either. Which she has had a reaction before. Victoria, one of Delaney's nurses from the PICU continues to remain close to Delaney even stopping by on her day off to visit. Delaney napped for a little while, while receiving the transfusions. She remained happy for the most part but we have noticed that she does become very irritable during transfusions, so as expected there were ups and downs the remainder of the day. Usually receiving blood and platelets will wipe Delaney out, and that's what happens she was very tired when we got home, and she was even nauseous, and dry heaved and spit up. But she managed to stay awake to see brother, Grandma, and Grandpa, we could tell this is always the highlight if her day. Grandpa took time to put Christmas lights up on the house yesterday, and Delaney loves to go out at night, in front if the house, for a few moments to look at the lights. After she went outside to look at the Christmas lights on the house Delaney fell asleep, on the couch in her favorite spot. And, as always, after Delaney falls asleep mommy and daddy scramble to spend a few minutes of one-on-one time with baby Merlin, wash syringes and get things ready to do all over again tomorrow. Thank you again for all of the love, prayers and support. GO TEAM DELANEY!

"And though she be but LITTLE, she is FIERCE!"

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