Today, again started out at about 3am. We think Delaney is waking up full and uncomfortable from her overnight feeds. We are hoping she will eat on her own soon so we can cut back on the NG tube feeds. Unfortunately, this morning she did throw up. Fortunately, this did not have a negative effect of Delaney's mood. She was her usual happy self throughout the day! We did our Monday morning blood draw and Daddy drove out to Walnut Creek to drop it off. We got Delaney's counts back and are relieved to know her counts are on the rise. She is still severely neutropenic. Her ANC is only 230. Her ANC needs to be greater 1000 to not be considered neutropenic. Delaney's days are fun, and enjoyable at home but, she remains inside the house with no visitors. This is a precaution to give Delaney the best chance at not getting sick and recovering quickly. She is doing great considering her set backs. It makes Mommy and Daddy happy beyond words to see Delaney feel better, act herself, and not be held back by her challenges. We only get to have Delaney feel better for a few days or at the most 1 week at a time, before chemotherapy starts, and makes her very sick. It is difficult to watch your child live in this constant swing from healthy to very sick. But Delaney lives it daily and she does it with such grace and fierceness. The rest of the day was relaxing, and low key, as she builds up her strength and repairs her body. Delaney was asleep by around 830, then it was time for Mommy and Daddy to do a cap change on her lumen (which is done every 7 days), administer her nightly GCSF injection, start her feeds, put her foot braces on and administer medications. We hope she sleeps soundly tonight. Thank you for all the prayers, love and support. As always .....GO TEAM DELANEY!!!
"And though she be but LITTLE, she is FIERCE!"