Wednesday, December 4, 2013

Tuesday Update...

Another early morning for Delaney. She was up at 4am and that means so was the rest of the house. Unfortunately, again, Delaney threw up some of her feeds. So, now we need to figure out how to manage this. We may have to ...start cutting her food at about 2 am and try to make up the calories in bolus feeds throughout the day or hook her up to the feeding pump at nap time. Either way we can't afford for her to lose any weight. Today marks the last day of chemotherapy for round 3! We are almost half way! With the completion of the tests next week and results given, this will mark the true half way point. She will have an MRI, renogram, audiology test, echo cardio gram, a lumbar puncture, and dentist appointment. All to asses if there is any damage to her organs from the chemotherapy and also to see if any tumor has come back. We are very anxious for the results. After speaking to the BMT (bone marrow transplant) at UCSF, it looks like we may be admitted on 12/16 to start round 4 of chemotherapy at UCSF. We learned today that these rounds could last up to 6 weeks each. That is a lot longer than we had expected, but Delaney is fierce, Mommy and Daddy will be right by her side, and Team Delaney behind us. Things have been busy setting up the appointments for next week as you could imagine it is a scheduling nightmare. We are reordering more medical supplies, and picking up new medication in preparation for UCSF. Delaney had a good day yesterday, and back to her happy go lucky self. Although she still cannot walk, or stand, she is crawling. She gets stronger everyday. Thank you for all the prayers, love, and support. As always.... GO TEAM DEALNEY!!!

"And though she be but LITTLE, she is FIERCE!"See More

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