Wednesday, December 18, 2013

Monday Update

Today was full of anticipation, Delaney's blood counts did not rise as we has hoped. So we were packed and ready to go, but when we got Delaney's counts they were just shy of where they needed to be to be admitted. Delaney is neutropenic again. So Delaney must remain at home for a couple more days. After talking to the bone marrow transplant team at UCSF, the said that regardless of Delaney's counts on Thursday she will be admitted then. It is quite an emotional high and low to be ready and then wait. As well as to try and be mentally prepared for what Delaney will be going through, then have to wait in anticipation and anxiety until Thursday. However the transplant team said that this is very common and it is why each chemotherapy cycle can last up to six weeks because it will take time for Delaney's bone marrow to recover. As much as we don't want to go this, we are eager to start so we can help Delaney through this treatment. Delaney remains very happy and in good spirits considering. She is trying to become more independent, taking a few steps on her own with out warning, exciting but scary because she can easily hurt herself, if she were to fall. This is especially true if her platelets are low, because she will bruise easily or her blood could not clot. None the less Delaney is making the most of this time at home, she and little Merlin are establishing a very strong bond hugging and playing with each other all the time, they are so happy together. Delaney's appetite is still poor, we still are supplementing her on a daily basis with formula through her feeding tube. It does seem as though she is drinking more fluids on her own. Delaney's goals for the next couple days are simple, stay happy, healthy as possible, try to eat more food, and most important enjoy time with her little brother and family. Thank you for all the prayers, love and support. As always..... GO TEAM DELANEY!

"And though she be but LITTLE, she is FIERCE"

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