Thursday, December 5, 2013

Wednesday Update

Wednesday Update

As always, we were up at 4am and ready to go! Delaney doesn't like to sleep in much these days. Last night we cut off her food at around 1:30am and to our surprise Delaney woke up happy and full of energy. We were able to... supplement her throughout the day via her NG tube to make up for what she did not get overnight. We had a successful day of no vomiting. Delaney did not eat anything today which makes us upset, but Delaney was full of energy all day! Brother plays such an important role in her rehab at home. It is heartwarming to see them interact with each other. Delaney continues to amaze us everyday! She is getting much stronger and is almost able to stand up with little to no help. She can't hold herself up yet, but we are hoping that will come with time. We finalized all of Delaney's appointments for next week. We will be traveling to kaiser Oakland M-Th of next week and to UCSF on Friday of next week. No break for our fierce little fighter. Tomorrow is an appointment with this radiation oncologist at kaiser Oakland. She will evaluate Delaney and answer any questions we have. We are meeting with her just in case Delaney does end up needing radiation. We are very anxious about this meeting because some of the long term side effects of radiation are frightening. Thank you all for the love, prayers and support. GO TEAM DELANEY!!

"And though she be but LITTLE, she is FIERCE!See More

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