Sunday Recap

Delaney's schedule has been so erratic, it is hard to keep up. Last night she was very restless and she was up before 5 am. Starting this morning we worked on tapering her medications down to see how she would tolerate food and liquids through out the day. Delaney did great she did not require any nausea medication through out the day. However, we are still hydrating and feeding Delaney through her feeding tube. Grandma and Grandpa were at the house all day, we got Delaney and everyone bundled up to go for a little walk around the block, Delaney really enjoyed the fresh air and bright beautiful day. Although it was short walk 15-20 minutes, none the less she was outside. Before Delaney's current prognosis she loved going on walks every chance she could get. Delaney also had a visit from her home physical therapist, he came by and assessed Delaney's progress for an hour or so. He said Delaney is doing excellent. However, the main goal for the day was to get a Christmas tree and out it up in the house. We want to get it up as soon as possible because it it very likely we will be in patient over the week of Christmas. So we want to give her the most Christmas as possible. Grandpa even put up lights on Thanksgiving day, and ever since Delaney and little Merlin go outside at night and look at the lights together. This year Delaney topped the tree off with a lighted star, she was so excited, and proud. When she walks into the room she points at the star and reminds us who put it up. Delaney stayed up a little bit later tonight, we hope she will sleep better and longer. She is getting stronger and doing better everyday, our goal is to help her get as strong and healthy before her admission to UCSF. Thank you for all the prayers, love, and support. As always....GO TEAM DELANEY!!!

"And though she be but LITTLE, she is FIERCE!"