As Delaney headed home after her discharge from UCSF, Delaney, Mommy, and Daddy knew they had more than their fair share of work cut out for them. Delaney arrived home full of smiles, excited as ever just to see her little brother. First priority was to make sure Delaney was happy and relaxed back at home. Then Mommy and Daddy had to find themselves quickly in front of the white board that Daddy created to keep track of medications and times, temperature and times, Delaney's weight, cap changes, dressing changes, NG tube date placement, fluid intake for the day including formula, liquid, and flushes, important contact information and a month calendar for up coming appointments, blood draws, and medication start and end dates. It is organized chaos. This keeps things smooth for Delaney making sure she gets the best care Mommy and Daddy can provide at home. The rest of the evening went smooth, Delaney was happy to be at home, she went to bed early just before 9pm. Mommy and Daddy were able to start Delaney's feeds early. Unfortunately, just before midnight Daddy woke up to Delaney stirring and with in minutes, Delaney was vomiting, Mommy was in with in seconds to help. Delaney vomited all the formula she had in 2 hours about 100ml. It was undigested formula, this was a big set back for today. Delaney will be behind in nutrients and calories needed. After all was done we were able to go back to bed around 130am. As for today, Delaney did great, she was happy, did not vomit, and seemed to have quite a bit of energy, more so than after her last chemotherapy and transplant. She is getting a little more tired, as expected, we will just do our best to support or fierce fighter through the coming weeks. Delaney's home health nurse came by to assess her and get a baseline on Delaney before the weeks ahead. Delaney will have another blood draw tomorrow morning, and depending on her blood counts there is a possibility Delaney could be headed back to UCSF for blood or platelets. The tidal wave of positive thoughts, prayers, love and support Delaney came with to UCSF, from you, Team Delaney, helped carry us all through cycle 5 of 6. It never gets easier. Thank you. Thank you for all the prayers, love and support. As always..... GO TEAM DELANEY!!
"And though she be but LITTLE, she is FIERCE!"