Tuesday, January 14, 2014

Late Monday Night Update....

Delaney continued to have another good day. Her blood draw went great this morning and all of her counts look good, so she did not need a transfusion, on the other hand her WBC count is still low and she remains neutropenic, (not able to fight of infection). She is showing a little interest in food another apple slice and almost 2 pieces of salami. Delaney loved playing with her brother today, as always and played some educational games on the iPad. With this good day, and a few moments here and there, Mommy and Daddy had time to reflect on what Delaney has endured the past 4 1/2 months and counting, and how far she has come. With 2 cycles left, this is what she has blazed a trail through.

September 9th missed little Merlin's 1st birthday (Delaney was admitted to hospital) September 10th Diagnosed with brain tumor
September 12 brain operation to remove tumor
52 total admitted overnight stays at the hospital (22 days of that was in the Pediatric Intensive Care Unit)
4 1/2 months of at least 1 vomit a day
2 operations (1 for brain tumor resection, 1 central line placement)
17 days of Chemotherapy
1 stem cell harvesting, a 5 hour harvest
1 stem cell transplant
1 Biopsy of tumor
3 MRI scans
3 CT scans
1 EVD placement for CSF drainage
11 X-rays chest/abdominal
1 complete blood transfusion (during brain operation)
10 Platelet transfusions
7 Blood transfusions
28 at home Blood draws
2 lumbar punctures
6 IV placements (4 at one time)
1 arterial line placement
1 foley catheter
4 EKGs
4 echocardiogram
4 renograms for kidney function
8 sedations ( 2 for operations, 3 for MRI, 1 EVD removal,1 stitches removal, and lumbar puncture)
7 NG tube (feeding tube) placements
2 surgical dressing changes
1 wheelchair for mobility challenges
4 transports by ambulance

All the while, Mommy and Daddy, with the support they have received, have been able to be at Delaney's side for every admittance, every appointment, every single moment of Delaney's story. That's how the posts began, Daddy and Mommy began to write in a journal at the hospital of the days events. Then uncle Travis created the Facebook page for Delaney's story. And to this day Daddy and Mommy write each post, pass it to Uncle Travis who posts the daily story and pictures. The idea is to some day compile everything, and show Delaney the story she wrote, the doctors, nurses, family, friends, strangers, organizations, businesses, and communities around that have rallied fiercely behind her. Thank you. Thank you for all the prayers, love, and support. As always.... GO TEAM DELANEY!!

"And though she be but LITTLE, she is FIERCE!"

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