Sunday, November 24, 2013

Friday and Saturday Updates

Saturday Update...

This morning began at 3 am again for Delaney. But by 5 am she did vomit again, only once, and that was it for the day. It is part to do because of her waking up on a semi full stomach from her over night feeds. We are trying not to taper down on the overnight feeds since this is her biggest and longest stretch for intake of food. We have tried to adjust her sleep schedule but it is so hard with all the medications and her need for rest. So for now this is becoming the new normal for Delaney. Delaney's home health nurse came by again this morning at the requet of Mommy and Daddy because when we flushed and heparin locked her lumens on her Broviac last night they were very very sluggish and seemed as though they might be blocked by the morning. So the nurse came over to help us work the lines just in case, and to our relief the lumens worked good and we could move on with our day. Delaney took an early morning nap around 8am. And when she did Daddy slipped Delaney's foot braces on for 1 hour to help work her feet into a neutral position. After her nap Delaney wanted to play with brother in the toy room on and off all day, wanted to try and walk , crawl and stand up by her self. This is great considering during chemotherapy cycles 1, and 2 Delaney did not want to get off the couch. Grandpa and Grandma stayed and helped out for most of the day, Grandma will stay the night as usual. Mommy was able to sneak in a hour or so at The Team Delaney Crossfit Challenge, to thank those she could, for their support. Thank you to all who showed up to show their support for Delaney, it will be a good highlight in Delaney's story. And a big thank you to Rich and Rachel Hill for organizing such a wonderful event and continuing to fuel the fire of Team Delaney! Again it was a very full, non stop, busy day. Delaney did good with her nausea for the remainder of the day, she was able to snack on a couple of things, and drink some fluids. It is 7pm and Delaney is asleep, looks like we are in for another early morning. Thank you for all the prayers, love, and support. As always..... GO TEAM DELANEY!!!

"And though she be but LITTLE, she is FIERCE!"

Friday Update

It was a difficult night and morning. Delaney was up at 230am nauseated and vomited around 3 am. Little did we know that this was the beginning of our morning. Following Delaney vomiting, she seemed to have some relief, and wanted to wake grandma up to hold her and play with her at 330 am. And of course grandma was there ready to go. Grandma has been staying with us around the clock when Delaney comes home from treatments, it is invaluable to have such help. By now it was 4 am and Mommy let Daddy go back to sleep for awhile, but less than an hour later Mommy was waking Daddy telling him that Delaney had vomited again. After both vomits it was right after Delaney was due for her medications so some medications may have come back up and we cannot give her more because we do not know how much her body absorbed. Also we start to play catch up with her fluid intake because dehydration can happen quick and that is a big concern. We watched Delaney closely until she fell asleep around 830 am. Then Delaney's home health nurse came by to asses her a she how her in patient chemotherapy went and see how Delaney is doing. The day revolved around giving Delaney fluids through her feeding tube, helping her keep her fluids down, and waiting for the time to give her anti nausea medications, she is getting some every three hours around the clock. Delaney was very very nauseated all day. But she always remained happy and smiled, and still wanted to play with brother. At one point Delaney wanted to try and walk on her own, she took one step toward Mommy from Daddy's arms. She works so hard. Delaney went to sleep around 730pm, grandpa came over after work and sat by her while she slept. Delaney needs the rest. Mommy and Daddy's day is still not over. Sorry the update is short and late, Daddy and Mommy were tired. Thank you for all the prayers, love and support! As always...


"And though she be but LITTLE, she is FIERCE!"

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