Today was the last chemotherapy treatment for cycle 2. Delaney has 4 more chemotherapy cycles to endure. Again Delaney was in such a wonderful, loving mood today. Seeing her that way gives mommy and daddy the endurance, focused energy, and happiness needed to tackle, and keep pace with the seemly endless demands of her treatment. Delaney's appointment with her oncologist went good, he said that Delaney is moving right along and on schedule, thankfully she did not have any major set backs form the c diff infection or the stem cell harvesting. Delaney's physical check up was good, she still needs to be on overnight feeds to obtain half of her daily caloric intake, since she does not eat well through out the day. The goal is for her to maintain her weight, because so often, most chemotherapy patients will loose weight, mommy and daddy are working hard to help her maintain her weight. Delaney then received her dose of chemotherapy, followed by a normal saline flush, and we are able to go home. Once we were back in town we received a call from her oncologist team and said that we needed to go to an optometrist appointment at 130 pm today. Mind you we just left Oakland kaiser and were back in our home town. Delaney needs a baseline test for her eyes, because the pressure she had on her brain from the tumor can cause permanent damage to the optic nerve, and she could go blind in that eye. So we turn around and back out to Oakland we go, it is very frustrating to be so close to home and turn right around. However we do not have a choice in the matter, it is what must be done to help Delaney have a successful recovery. We met with the optometrist, Delaney had to have her eyes dilated in order to see her optic nerves. From the examination the optometrist said her optic nerves are normal, and she does not need glasses. Although Delaney does need to wear and eye patch (which we have been trying to get her to do) for 2-3 hours a day. We finally made it back home again. Delaney played with brother, and was very active. She is almost crawling again, mommy and daddy are shadowing her so she does not fall and hurt herself, but she is getting stronger. We love seeing Delaney so active and happy, we cherish these moments and take them in, for we know what lies ahead. Delaney will close out the week with 3 more appointments.
As Delaney finishes up a difficult chapter of her story, we have all pulled something from it. But tonight she had some help with the last uplifting page and it comes from the support of communities around, family, friends, and strangers. They filled the page with love, prayers, motivation, and the true human character of taking care of each other.
Thank you for all who were able to attend the event at Sauced in Livermore, you have left us speechless, thank your for all the prayers, love, and support. As always GO TEAM DELANEY!!!
"And though she be but LITTLE, she is FIERCE!"