Wednesday, November 6, 2013

Tuesday Update

Daddy tried to write down more of Delaney's story last night but was so tired he fell asleep while he was trying to write it. Essentially we have been on the go since 330 this morning. Delaney woke up at 330 am and vomited. We were right at her side, caring for her and soothing her. We stopped her feeds so that she did not get more nauseas and vomit again. We will try to make up those calories through out the day. Then it was time to clean sheets, change clothes, and get Delaney settled. The rest of the morning went well and it was time to head to her out patient chemotherapy treatment. The doctor said that Delaney is doing well, and that she may be able to stop taking some of the medications that she has been on since her operation. This is a sigh of relief for Mommy and Daddy because this means Delaney's body can now take on the process of salt regulation and not to have to depend on steroids. More blood work was ordered while we were at the clinic to check Delaney's counts. We waited and found out Delaney's white blood count is 0. She is at extremely high risk for infection. She also needed a platelet transfusion due to her counts. Her oncologist is hoping she will not need a blood transfusion this time, but more labs tomorrow will determine this. We waited for the platelets and were able to go home about 3pm. Delaney does well with the transfusions. She gets pre medicated due to a reaction she had last time. She slept the whole way home and even for a little bit after. Delaney's mood was up and down. She just wanted her Daddy, and of course Daddy held her until she felt better. The rest of the night was pretty calm. Bath, brush teeth, watched a show with brother and to our surprise, Delaney was asleep by 8:30. We were able to start her feeds a little earlier in hopes to give her a few extra calories. We are hoping for an uneventful night. We can all use some rest. Thank you all for your prayers and support. GO TEAM DELANEY!

"And though she be but LITTLE, she is FIERCE!"

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