Thursday, October 3, 2013

Day 20 Post Op

LONG day today or so it felt like you may have seen on an earlier post Delany woke up at 5 am asking for Cheerios and that was the start of 4 bowls throughout the day. The Neuro team came by, like they do every morning and looked at Delany and her progress. They said that she is progressing well and that after 22 days in the PICU it was time to be transferred to the Pediatric Ward across the hall. Physical Therapy was able to get us a wheelchair for Delaney. We believe this was a little freedom that she needed to lift her spirit even more, she went in to the wheelchair 3 separate times today by herself, and she sure enjoyed it! This helps her gain more strength in her core and beck muscles. Just by chance she came across Sadie the therapy dog and Delaney was able to feed Sadie a doggie treat. That made her smile... Then Sadie tickled her feet with her tail. We all look forward to more rides in the wheelchair for the days and weeks to come to spend less time in bed. Again Grandma, Grandpa and baby Brother Merlin came to Delaney's bedside. Grandpa took Delaney's "Blankey" (pink blanket) as he does at least 2 times a week for a good wash so it is fresh and clean for her. As you may have read Delaney is to start chemo on Monday Oct. 7th. When in chemo it is possible for her to become severely neutropenic and at high risk for infection because her body may not be able to fight off bacterial infection. Knowing this we got our flu shots done today, and anyone in the family that does not have it cannot be in contact with Delaney for her safety. Our nurses in the PICU were sad to see us go! We were sad also. We have made very close friends with all of Delaney's nurses and she has really grown to love them! Over the next few days we will learn how to care for and use the Broviac. In the mean time we are setting up in our new room, trying to make it as bright and beautiful as the baby girl we all love! Delaney Thank you all for your love and support!


Quote of the day "it is your reaction to adversity, not the adversity, that determines how your life's story will develop"

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