Thursday, October 24, 2013

Wednesday Update....

Cycle 1 of chemotherapy completed today and 5 more cycles to go. Today started off great. Delaney was up and wanting to watch a show at 5am. We had a hard time flushing her NG tube, nothing would flush! We couldn't give her meds or fluids for hydration. We had an appointment with her oncologist and then a chemotherapy treatment. The oncology appointment went well. They are going to start her 2nd round of chemo 1 day earlier so UCSF can harvest her stem cells on a specific date. While she received her chemo, PT came by and decided that since Delaney isn't using her ankles like she used to and also some of the chemo meds can cause muscle deterioration, we need to order custom braces to engage her ankles and keep them at a 90 degree angle. Those should be in in a few weeks. Sancho, the therapy dog, also came by for a quick visit which put a big smile on Delaney's face. After her chemo the nurses and Daddy took Delaney into the procedure room and switched out her NG tube. Of course she did not like this and screams could be heard from rooms away. To check placement the nurse drew back in hopes of getting stomach contents, fortunately she did, but also drew up about 5cc of blood. She called the oncologist and he decided to change her gastro meds and that this is probably due to the steroid which she has been taking since her tumor was found. We came home and had the daunting task of changing the dressing on her Broviac. This is a very sterile process, so you can imagine fighting a 2 year old to keep a mask on or look in the opposite direction so she doesn't breath on the site. Luckily, Delaney was cooperative, for the most part. Her home health nurse came by, brought us some more supplies and watched us change Delaney's Broviac caps, which also went well. Delaney continues to amaze us on a daily basis. She came to a full upright sitting position all on her own! Of course she is a little wobbly, but she did it!! We are so happy and her little personality is starting to show again! It's hard watching her do so well knowing in a few short days cycle 2 starts and she will, again, be very sick. Daddy had the opportunity to go down to Swirl on the Square tonight for the awesome fundraiser!! He was able to meet many of Delaney's fans! We are truly grateful for each and every one of you. It was very humbling to see the number of people who came out to show support for our little princess. We are not alone in this battle. We have a small army fighting right next to us. Thank you all so much for your prayers, support, and love.


"And though she be but Little, she is FIERCE"!

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