Tuesday, October 15, 2013

Monday Night Update

After Delaney vomited last night she was able to sleep through the night which made all of us happy. Delaney still needs her blood drawn every Monday and Thursday to get her blood counts and sodium checked. We do this at home, drawing blood from her Broviac. Next the blood must be taken to Walnut Creek Kaiser lab within one hour, and it has to be processed by noon. That is quite a task in itself. We got her blood counts back and found out that she is severely neutropenic, anything below 500 means she is at high risk. Her count is 24. Normal counts are 1000+, because her white blood cell count is so low she cannot fight off infection. Delaney now must wear a mask when she has to go out in public, to the doctors for instance, and unfortunately at this time she cannot have any visitors. But every night daddy and mommy give Delaney and an injection of GCSF into her thigh to help promote white blood cell growth so she can recover. It is stressful to know she is so vulnerable. One if our biggest challenges now is getting Delaney off of our couch or the hospital bed. Mommy and daddy were so used to having an energetic 2 1/2 year old that would run us into the ground. Now, with the operation, regression, and lack of energy or feeling good due to the chemotherapy, it is a long battle everyday, that is not always successful, to get her up and moving, trying to get Delaney to eat and drink, working on getting her back in the routine of home, bringing little brother by all day so we can all adjust to our new way of life, caring for Delaney and raising a 1 year old. This week alone Delaney has 2 blood draws, 3 appointments, one which is outpatient chemotherapy. Janice and I would like to take a moment to thank everyone for the mind-boggling show of support for our daughter and family. It does not go unnoticed. Thank you for the prayers, love and support. GO TEAM DELANEY!!

"And though she be but LITTLE, she is FIERCE!"

No comments:

Post a Comment