Friday Recap and Update!!
Sorry this is late team. Here is a recap of all events yesterday Merlin and Janice wanted to share.
It started with 14 days of vomiting and nausea, persistent doctor visits and phone calls, only to end up being admitted to the hospital for 34 days and nights straight. Today, Delaney was discharged from the Pediatric Ward at Oakland Kaiser. Ready or not we have a new way of life now. In no way could we have ever been prepared for this. Today, the neurosurgeon team came by as they always do in the morning visited for a few moments with Delaney, discussed what is in store for next week and what lies ahead for the next year. It is going to be a daunting journey. We cannot even begin to wrap our minds around it all, but that is why we must take things one day at a time. They told us that we would be going home today, that in its self is a whole other adjustment. We did our best to explain to Delaney that it would be time to go home soon. We asked Delaney what she wanted to do and all she said was that she wanted to play with her younger brother, and fly her kite. She had such a true, big, genuine smile. Life can be simple. The rest of the morning and day was spent, trying to get some last minute teaching and knowledge about care for our daughter, (as if being new parents was not challenging enough) because we know we have big shoes to fill, following the countless doctors and nurses that cared for Delaney. We were given some medical supplies to get us through the next couple of weeks until our weekly delivery of supplies kicks in. In the most worst of circumstances we have met some of the most caring, genuine individuals, and teams. Delaney was still given her medications throughout the day, she had a little appetite, nurses and doctors stopped by to check on Delaney. We began to pack up cards, toys, pictures, drawings, and tokens of prayers and love. It is humbling, and brings us to tears to realize the wave of love and support everyone has given not only Delaney, but us as a family. That is why we have TEAM DELANEY, if you sent a card, gave us a meal, said a prayer, sent positive thoughts, posted on Facebook, donated, just sat in the halls or family room just to be there, shared Delaney's story or just kept us in your thoughts, it has helped us to stay by Delaney's side to help heal her and bring her back home. Thank you! Mommy went and picked Delaney's medications up which seems to be half of the pharmacy's medicine, or so it seems. We received our discharge papers and escorted to our car. On the drive home Delaney slept, mommy stared at her baby girl, and cried. There was so much to process with the silence of the car ride home. We reached home, what a comfortable feeling. Mommy carried Delaney in and she slept on her shoulder for the first time in over a month, that is healing. And she slept, for the rest if the night. Delaney has been through so much, but keeps a smile, keeps moving on, staying positive and though she be but little she is fierce. Continuing to fight and be cured. Thank you for the prayers, love, and support.
GO TEAM DELANEY!!
Quote of the day:
a fixed purpose, the power and will to persist, resolve, to have the drive, to have the grit, to go the distance, to be hell-bent on reaching a goal , and getting it done no matter what.