Tuesday Night Update

Delaney woke up a couple times during the night last night, and made it an early morning for us, but at least she woke up in a good mood. Daddy had to make a trip to the DMV today to get a temporary handicap placard.... The doctor gave us the application for the placard because of the mobility challenges that Delaney is facing and is overcoming in due time. But with the constant visits for chemotherapy, follow up imaging or tests on different organs and functions of her body through out chemotherapy. This will makes things safer and easier for us all. Today and almost everyday our challenge is to get her to eat and drink. We try to make eating and drinking as fun as possible for her. Delaney's doctor says that food represents nausea and vomiting to her and it is essentially hardwired in her brain to think that all food will make vomit or cause symptoms related to nausea, which is why we are having a difficult time getting her to eat anything. This is because of where her tumor was on the cerebellum and the symptoms she had prior to the operation, which was 16 days of vomiting. In a way we must re-train the brain to think of food differently, this is critical because the chemotherapy causes vomiting, everyday we work on correcting this problem. Delaney played in the play room on and off today for about 3 hours. It was nice to see her playing so well and getting to interact with her. She also had a visit for in house physical therapy. The session went very well, we discussed a variety of methods to strengthen her body, but it turns out trying to get her to play with toys, and the actions associated in playing with toys is some of the best physical therapy. Delaney was very happy today and is finding her way off the couch more, into our arms, outside or to the play room. Tomorrow Delaney has a check up from the oncologist and goes in for more outpatient chemotherapy, and this will complete 1 cycle. Thank you for all the prayers, love and support. As always..... GO TEAM DELANEY!

"And though she be but LITTLE she is FIERCE!See More