Back to ER......

The night was uneventful, but Delaney did not go to bed until 1 am. Delaney got us up around 6am and we were out on the couch letting her watch a movie and we were getting things ready for the day. We started off with some coffee that Mommy and Daddy live off these days, some medications for Delaney that were due and we moved on to heparin locking the lumens on her Broviac. We got her settled down, cleansed the caps twisted the heparin on and pushed, and we met resistance once again. Some of you may remember that we had this problem last week. You cannot just force the heparin in the lumen because one of two things could happen, the line could burst or worse you could push a clot through the lumen. They only way to safely flush is to go to the hospital and get anticoagulant put in the lumens and let it sit and break what clot is in there. And that is what we did today, for about 5 hours, after just being discharged yesterday. It is always stressful having to do so much work on her Broviac. However, we do what must be done for Delaney. After that inconvenience we still knew Delaney wanted to make the most of the day. We got home and Uncle Travis came by and was able to see Delaney for a little bit, along with their dog Bernard. Delaney enjoyed that time. Grandma and Grandpa and little brother came over to spend time with Delaney. Little Merlin is going to stay the night tonight, ( so is Grandma to help us get things back on track ) we are trying hard to get us back together as a family under one roof, but it is tough, considering all that is going on. Delaney always surprises us, tonight she wanted to go outside with little brother and ride in their cars! It was such a great site to see, Mommy and Daddy were so happy to see their babies together outside! Delaney is doing good she has much more head, neck, and trunk control. Delaney is still not able to sit I her own, or walk. She just keeps pushing forward, a little improvements here, and a little there. We are so proud of her. We hope there are no issues that come up for the next few days, with anything. A few consecutive, uninterrupted days at home will be healthy and healing for us all. Thank you for all the prayers, support , and love. As always........GO TEAM DELANEY!!

"And though she be but LITTLE, she is FIERCE!"